Tag: Autoimmune Encephalitis

Autoimmune encephalitis in children – June 2017 review

Researchers in three countries have come together to publish a review article in Current Opinion in Neurology, June 2017. Issues addressed in this comprehensive publication include: challenges in diagnosis, antibody detection methods, treatment decisions, seronegative cases and the challenges in monitoring patients over time. Points of emphasis include the following: Many autoimmune encephalopathies are central …

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Targeted Therapy Holds Future Promise

In many areas of medicine, treatments are increasingly becoming targeted in a way that benefits patients. This is happening in fields ranging from oncology to neurological disease. In this month’s Neurology Now, treatment for autoimmune encephalitis is being cited as one area where “precision medicine” holds promise for better and targeted treatments according to antibody …

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A Case of Anti-LGI1 Encephalitis

As research on autoimmune encephalitis has progressed over the past 10 years, pioneers in the field have often referred to it as a heterogeneous group of disorders. The commonality in various forms of AE is the underlying pathologic mechanism in a patient’s own immune system. For unknown reason the patient’s immune system has produced antibodies …

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A daughter remembers her mom to help others with AE

The following was sent to us by Erin Wicke Dankert to honor her mother Rita. “My family has been very open with my Mom’s experience in hopes of helping others with this condition.”  AEA is so appreciative of this personal sharing by all who loved Rita. In March, my family suffered the devastating loss of …

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Call for abstracts on autoimmune encephalitis

At the Autoimmune Encephalitis Alliance one of our goals is to promote research among professionals so that advancements can be made in the study and treatment of autoimmune encephalitis. We are pleased that in the spirit of collaboration the United Kingdom-based Encephalitis Society has extended the call for abstracts for their annual meeting to the …

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Treatment of autoimmune encephalitis with immune based therapies

The Journal of Neurology, Neuroscience, and Psychiatry reports on autoimmune encephalitis patients treated with immune based therapy including rituximab.  Authors Dowland F, Swayne A, Bhuta S, et. al. discuss three cases and conclude, “The field of neuro-immunology has seen a plethora of newly discovered autoantibodies, yet there remain a significant number of patients, with features suggestive …

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Autoimmune encephalitis community loses an amazing doctor far too soon

A very heavy heart, shock, and sadness met our hearing of the news that  Dr. Jessica Panzer passed away after a short, courageous battle with non-smokers lung cancer. She received M.D. and Ph.D. degrees from the University of Pennsylvania in 2006. She continued on at the University of Pennsylvania and the Children’s Hospital of Philadelphia as …

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A call for brain tissue samples

The following contains a sensitive request, and is a copy of a letter sent to medical professionals that are part of AEA’s Clinicians Network.  We, at AEA, thought that those who have connected with us over the years would want to see this extraordinary request. Please know that we treat such a call for samples with …

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AEA sponsors Boston meeting on future of autoimmune neurology with ~70 medical professionals

  Roughly 70 researchers, nurses, neuropsychologists, neurologists, residents, fellows, patient advocates, patients, and families attended a “Dinner and Discussion on the Future of Autoimmune Neurology” on the evening of 4/27/17, held at the Richard Simches Research Center at Massachusetts General Hospital (MGH).  Organized by Dr. Jenny Linnoila, a neurologist at Massachusetts General Hospital, the overall …

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