Autoimmune Encephalitis

Meet Dr. Matteo Gastaldi September 1, 2022

Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]

AE 101 with Dr. Dana Mitchell June 3, 2022

Thank you Dr. Mitchell for a clear and engaging explanation of the what happens in the body with AE. Thank you to the AEA Northeast Support Group for recommending Dr. Mitchell as a presenter. Thank you to everyone for your attendance, great questions and feedback. This post includes an overview of the presentation, participant feedback […]

2021 AEA Seed Grant Final Report: Dr. Soon-Tae Lee May 27, 2022

It was May 14, 2021 when we introduced Dr. Soon-Tae Lee. Click here for last year’s post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Lee explains the outcomes of his project, Development of optimal […]

2021 AEA Community Seed Grant Final Report: Dr. Juna de Vries May 24, 2022

It was May 20, 2021 when we introduced Dr. Juna de Vries . Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. de Vries explains the outcomes of […]

2021 AEA Seed Grant Final Report: Dr. Amaia Muñoz Lopetegi May 26, 2022

It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]

Celebrating Partnership: EUROIMMUN Neuroimmunology Summit May 5, 2022

Thank you EUROIMMUN for inviting the AE Alliance family to attend the EUROIMMUN Neuroimmunology Summit. All AE Alliance Clinicians and Support Network members are invited to attend this one-day virtual summit bringing together neurologic medical experts from across the United States. The topics to be discussed include: Updated guidelines for the diagnosis of neuroimmunology conditions […]

Why Research Network Month? A Conversation with Caterri Woodrum & Meg Poe May 4, 2022

The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Grant Program in 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE. The program is funded by members, friends and supporters of the AE Alliance Community. Would you like to know the answers […]

World Encephalitis Day 2/22 February 20, 2017

World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222.  While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red […]

FDA approves drug for relapsing forms of multiple sclerosis – possible implications for autoimmune encephalitis? April 26, 2017

Medpage Today reports that the FDA has approved the biologic drug ocrelizumab (Ocrevus) for treatment of relapsing forms of multiple sclerosis. Ocrelizumab is an anti-CD20 monoclonal antibody targeting B cells which is the same mechanism of action as rituximab (Rituxan), which some earlier studies found to be effective against both relapsing-remitting and progressive MS. Off-label use of rituximab […]

“You can’t diagnose something you have never heard of before” – a UK woman’s story of autoimmune encephalitis April 22, 2017

Smashing windows, self-harming, and shaving her own hair, Sarah Galloway had to be placed in mental hospital before doctors could determine her illness.  ChronicleLive reports on a 22 year-old woman who fell ill with autoimmune encephalitis as she was about to enter her final year of university. Click here to read the full story. We wish Sarah […]