Medical Advisory Board
The AE Alliance Medical Advisory Board (MAB) brings together internationally renowned experts in AE to allow the Alliance to provide patients, families and medical professionals with trusted, evidence-based information and practices. The MAB includes members with different areas of expertise including adult and pediatric neurology, rheumatology and immunology. The goal of the MAB is to ensure the Alliance has access to the most up-to-date information on diagnosis, treatment and outcomes for AE, as well as ongoing research initiatives.
With the assistance of the MAB, the Alliance will:
- Develop programs and resources for patients, families, and the medical community
- Support research
- Disseminate best practices for the diagnosis and treatment of AE
Medical Advisory Board Committees
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Education
Advises AE Alliance on patient and professional education initiatives. The members assist AE Alliance in the development and dissemination of evidence-based materials and programs for both patients and their families, as well as resources for medical professionals.
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Research Promotion and Dissemination
Advises AE Alliance on the strategic direction for participation and funding of research projects. The members establish protocols to review research proposals, ensure the quality of the scientific research methodology and potential for impact on the AE community.
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Clinical Care and Standards of Excellence
Assists AE Alliance in advocating for standards of care for patients with AE through drafting of guidelines, standards of care and necessary services.
MEDICAL ADVISORY BOARD MEMBERS
RESEARCH PROMOTION AND DISSEMINATION
Led by
ANUSHA YESHOKUMAR, MD
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
JONATHAN KUO, MD
KECK MEDICINE OF USC
ERIC LANCASTER, MD
THE UNIVERSITY OF PENNSYLVANIA
SEAN PITTOCK, MD
MAYO CLINIC ROCHESTER MN
MYRNA ROSENFELD, MD
INSTITUTE FOR BIOMEDICAL RESEARCH (IDIBAPS) OF THE UNIVERSITY OF BARCELONA, SPAIN, ADJUNCT PROFESSOR OF NEUROLOGY AT THE UNIVERSITY OF PENNSYLVANIA
MAARTEN TITULAER, MD, PHD
ERASMUS MC UNIVERSITY MEDICAL CENTER, DEPARTMENT OF NEUROLOGY, ROTTERDAM, THE NETHERLANDS
CLINICAL CARE AND STANDARDS OF EXCELLENCE
Led by
WILLIAM GALLENTINE, DO
STANFORD UNIVERSITY
SUSANNE BENSELER, MD, PHD
ALBERTA CHILDREN'S HOSPITAL - CANADA
MARK GORMAN, MD
BOSTON CHILDREN'S HOSPITAL
SAROSH IRANI, MD
OXFORD AUTOIMMUNE NEUROLOGY GROUP, UNIVERSITY OF OXFORD, JOHN RADCLIFFE HOSPITAL - UNITED KINGDOM
EYAL MUSCAL, MD, MS
TEXAS CHILDREN’S HOSPITAL
KENDALL NASH, MD
UCSF BENIOFF CHILDREN'S HOSPITAL SAN FRANCISCO
SOUHEL NAJJAR, MD
NORTHWELL HEALTH
CYNTHIA WANG, MD
UT SOUTHWESTERN MEDICAL CENTER
ELIZABETH WELLS, MD
CHILDREN'S NATIONAL HOSPITAL