The AE Alliance Medical Advisory Board (MAB) brings together internationally renowned experts in AE to allow the Alliance to provide patients, families and medical professionals with trusted, evidence-based information and practices. The MAB includes members with different areas of expertise including adult and pediatric neurology, rheumatology and immunology. The goal of the MAB is to ensure the Alliance has access to the most up-to-date information on diagnosis, treatment and outcomes for AE, as well as ongoing research initiatives.

With the assistance of the MAB, the Alliance will:

  1. Develop programs and resources for patients, families, and the medical community
  2. Support research
  3. Disseminate best practices for the diagnosis and treatment of AE

Medical Advisory Board Committees

  • Research Promotion and Dissemination

    Advises AE Alliance on the strategic direction for participation and funding of research projects. The members establish protocols to review research proposals, ensure the quality of the scientific research methodology and potential for impact on the AE community.

  • Clinical Care and Education

    Assists the AE Alliance in advocating for standards of care for patients with AE through case conferences, the development and dissemination of evidence-based materials and programs for both patients and their families, as well as resources for medical professionals.

RESEARCH PROMOTION AND DISSEMINATION

Led by

ANUSHA YESHOKUMAR, MD
ANUSHA YESHOKUMAR, MD

ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI

SUSANNE BENSELER, MD, PHD
SUSANNE BENSELER, MD, PHD

ALBERTA CHILDREN'S HOSPITAL - CANADA

SAROSH IRANI, MD
SAROSH IRANI, MD

OXFORD AUTOIMMUNE NEUROLOGY GROUP, UNIVERSITY OF OXFORD, JOHN RADCLIFFE HOSPITAL - UNITED KINGDOM

ERIC LANCASTER, MD
ERIC LANCASTER, MD

THE UNIVERSITY OF PENNSYLVANIA

MYRNA ROSENFELD, MD
MYRNA ROSENFELD, MD

INSTITUTE FOR BIOMEDICAL RESEARCH (IDIBAPS) OF THE UNIVERSITY OF BARCELONA, SPAIN, ADJUNCT PROFESSOR OF NEUROLOGY AT THE UNIVERSITY OF PENNSYLVANIA

MAARTEN TITULAER, MD, PHD
MAARTEN TITULAER, MD, PHD

ERASMUS MC UNIVERSITY MEDICAL CENTER, DEPARTMENT OF NEUROLOGY, ROTTERDAM, THE NETHERLANDS

CLINICAL CARE AND EDUCATION

Led by

TANIA CELLUCI, MD
TANIA CELLUCI, MD

MCMASTER CHILDREN’S HOSPITAL – CANADA

RUSSELL DALE, MD
RUSSELL DALE, MD

THE CHILDREN’S HOSPITAL AT WESTMEAD – AUSTRALIA

Amanda Piquet, MD
Amanda Piquet, MD

University of Colorado School of Medicine

Coral Stredny, MD
Coral Stredny, MD

Boston Children's Hospital

ELIZABETH WELLS, MD
ELIZABETH WELLS, MD

CHILDREN'S NATIONAL HOSPITAL