The AE Alliance Medical Advisory Board (MAB) brings together internationally renowned experts in AE to allow the Alliance to provide patients, families and medical professionals with trusted, evidence-based information and practices. The MAB includes members with different areas of expertise including adult and pediatric neurology, rheumatology and immunology. The goal of the MAB is to ensure the Alliance has access to the most up-to-date information on diagnosis, treatment and outcomes for AE, as well as ongoing research initiatives.
With the assistance of the MAB, the Alliance will:
Advises AE Alliance on patient and professional education initiatives. The members assist AE Alliance in the development and dissemination of evidence-based materials and programs for both patients and their families, as well as resources for medical professionals.
Advises AE Alliance on the strategic direction for participation and funding of research projects. The members establish protocols to review research proposals, ensure the quality of the scientific research methodology and potential for impact on the AE community.
Assists AE Alliance in advocating for standards of care for patients with AE through drafting of guidelines, standards of care and necessary services.
INSTITUTE FOR BIOMEDICAL RESEARCH (IDIBAPS) OF THE UNIVERSITY OF BARCELONA, SPAIN, ADJUNCT PROFESSOR OF NEUROLOGY AT THE UNIVERSITY OF PENNSYLVANIA
OXFORD AUTOIMMUNE NEUROLOGY GROUP, UNIVERSITY OF OXFORD, JOHN RADCLIFFE HOSPITAL - UNITED KINGDOM