Autoimmune Encephalitis

Antibody associations in 2750 children with suspected autoimmune encephalitis February 12, 2024

Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]

AEA Community Seed Grant Program – 2023 Recipients August 15, 2023

The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]

Meet Dr. Robin van Steenhoven August 15, 2023

Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September […]

Meet Dr. Helena Ariño Rodríguez August 15, 2023

Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Cemcat, Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, […]

Meet Dr. Alessandro Dinoto August 15, 2023

Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is […]

Clinical Approach To The Diagnosis Of Autoimmune Encephalitis In The Pediatric Patient June 20, 2023

We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]

Develop an Attitude of Gratitude this December with the AE Alliance November 9, 2022

Whether you are living with AE, are a caregiver, family member, friend, physician, researcher, Board Member, MAB Member, program partner or sponsor or this is your first time ever to the Autoimmune Encephalitis website, we are excited you are here and ready to develop an attitude of gratitude! This program is inspired by a year […]

AEA Family Day 2022 October 14, 2022

We are excited to announce the Fall AEA Family Day (mini). Instead of a single, full-day, AEA Family Day, the AE Alliance and our program sponsor, EUROIMMUN offer several mini-days throughout the year. This gives us the opportunity to respond to topics that are important to you throughout the year. The Fall AEA Family Day […]

Meet Dr. Leigh Sepeta & Dr. Elizabeth Wells October 11, 2022

Dr. Leigh Sepeta & Dr. Elizabeth Wells (Children’s National Hospital, Washington DC, USA) were awarded a 2022 AEA Community Seed Grant to investigate the Predictors of Cognitive Outcomes in Children with Anti-NMDA Receptor Encephalitis. Learn more about their research and how it will impact those affected with autoimmune encephalitis. The start date for the award […]

Meet Dr. Matteo Gastaldi September 1, 2022

Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]