Autoimmune Encephalitis

2022 AEA Seed Grant Final Report: Dr. Leigh Sepeta & Dr. Elizabeth Wells May 22, 2024

It was October 11, 2022 when we introduced Dr. Leigh Sepeta & Dr. Elizabeth Wells.  Click here for their introductory post where we learned about them, their study plans and how their project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Leigh Sepeta explains the outcomes of […]

2022 AEA Seed Grant Final Report: Dr. Matteo Gastaldi May 13, 2024

It was September 1, 2022 when we introduced Dr. Matteo Gastaldi.  Click here for his introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Gastaldi explains the outcomes of his project, the Cognitive teleRehabilitation in […]

Neurologic, psychiatric, and sleep investigations after treatment of anti-leucine-rich glioma-inactivated protein 1 (LGI1) encephalitis in Spain: a prospective cohort study.  March 12, 2024

A recently published study is providing a close look at anti-LGI1 encephalitis which, after anti-NMDA receptor encephalitis, is the second most common autoimmune encephalitis. Anti-LGI1 encephalitis most often affects middle aged patients who come to medical attention because of the quick onset (over a few weeks to a few months) of memory loss. Less commonly […]

Antibody associations in 2750 children with suspected autoimmune encephalitis February 12, 2024

Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]

AEA Community Seed Grant Program – 2023 Recipients August 15, 2023

The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]

Meet Dr. Robin van Steenhoven August 15, 2023

Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September […]

Meet Dr. Helena Ariño Rodríguez August 15, 2023

Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Cemcat, Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, […]

Meet Dr. Alessandro Dinoto August 15, 2023

Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is […]

Clinical Approach To The Diagnosis Of Autoimmune Encephalitis In The Pediatric Patient June 20, 2023

We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]

Unexpected Career Interruption – You Can Come Back Stronger from Autoimmune Encephalitis October 17, 2017

Many thanks to Will Earnhart for sharing his inspiring story reprinted below, which first appeared in the September 2017 Alaska Bar Association quarterly newspaper. As attorneys, many of us have type “A” personalities; always striving to be successful in our careers.  We never take a step back for fear of stopping the momentum.  Almost all […]