Events
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This support group is led by Therese Fledderjohn (OH). Her son Alex was diagnosed with anti-NMDAR encephalitis after being misdiagnosed for many years.
We are excited to have Dr. Hesham Abboud (University Hospitals/Cleveland Clinic) join us, so we can learn more about his approach to AE care, his AE Clinic and his research involvements.
Email [email protected] to register.
Type: Local Support Group meeting
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Lisa Lauter (TX), a LGI1-antibody encephalitis survivor.
Email [email protected] to register.
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Joe Calcagno (NY), a GAD65 encephalitis survivor.
Email [email protected] to register.
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Rachael Bikbov (WA), a seronegative AE survivor.
Email [email protected] to register.
This year the AEA Family Day will be a virtual, fun and interactive event. Share stories, learn about the latest advancements in AE, discover strategies for living with AE, and prepare to become an AE Advocate. More information to come.
Our Advocacy program, AE on the Hill, is all about raising awareness, sharing your unique AE journey, creating an impact, inspiring action, and changing lives. When we launched this program in 2020 our focus was on telling your AE story effectively. In 2021 we will prepare you to take your story to your legislators. More information to come.