Events
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This support group is led by Therese Fledderjohn (OH). Her son Alex was diagnosed with anti-NMDAR encephalitis after being misdiagnosed for many years.
Type: Local Support Group meeting
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Lisa Lauter (TX), a LGI1-antibody encephalitis survivor.
Email support@aealliance.org to register.
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Joe Calcagno (NY), a GAD65 encephalitis survivor.
Email support@aealliance.org to register.
Support Groups bring together patients and caregivers that have been affected by AE. A support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information about AE and/or treatments. This Support Group is led by Rachael Bikbov (WA), a seronegative AE survivor.
Email support@aealliance.org to register.
Our Advocacy program, AE on the Hill, is all about raising awareness, sharing your unique AE journey, creating an impact, inspiring action, and changing lives.
