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Antibody associations in 2750 children with suspected autoimmune encephalitis February 12, 2024

Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]

Meet Dr. Robin van Steenhoven August 15, 2023

Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September […]

Meet Dr. Helena Ariño Rodríguez August 15, 2023

Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Cemcat, Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, […]

Meet Dr. Alessandro Dinoto August 15, 2023

Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is […]

Clinical Approach To The Diagnosis Of Autoimmune Encephalitis In The Pediatric Patient June 20, 2023

We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]

2023 Research Network Month: Dr. Amaia Muñoz-Lopetegi ~ 2021 AEA Community Seed Grant Recipient ~ Research Update May 15, 2023

Dr. Amaia Muñoz-Lopetegi received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, she provides an update on her research with anti-LGI1 encephalitis: diagnostic tests and prognostic implications. The AEA Community Seed Grant program is funded by donations from the AEA Support Network community & friends. Awarded applications must meet […]

2023 Research Network Month: Dr. Soon-Tae Lee ~ 2021 AEA Community Seed Grant ~ Research Update May 9, 2023

Dr. Soon-Tae Lee received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, he provides an update on his research with seronegative autoimmune encephalitis: clinical characteristics and courses, the effect of immunotherapy and its duration, and prognostic factors. The AEA Community Seed Grant program is funded by donations from the […]

Research Network Month 2023 May 3, 2023

AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? What can you expect during May 2023? How can you ensure you don’t miss out? If you are on Facebook or Instagram, follow us! Not a social media person? Check our blog daily. We may not post everyday but […]

Autoimmune Encephalitis Often Is Misdiagnosed, Even at Specialty Centers – What to Do to Get It Right February 27, 2023

Dr. Eoin Flanagan from the Mayo Clinic in Rochester, Minnesota and colleagues from multiple institutions have published this article demonstrating that more than one in five patients diagnosed with autoimmune encephalitis (AE) were misdiagnosed and that about half of these patients actually had a primary behavioral or psychiatric disorder. Red flags associated with receiving the […]

How Are GivingTuesday & the AE Alliance Doing Good? November 10, 2022

What Do You Know about Giving Tuesday and the AE Alliance? As Director of the AE Alliance, I first learned about autoimmune encephalitis and the Alliance three years ago and it was not until three months ago I began learning about GivingTuesday. Both organizations are doing good. Here’s a bit more detail about their histories, […]