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AE 101 with Dr. Dana Mitchell June 3, 2022

Thank you Dr. Mitchell for a clear and engaging explanation of the what happens in the body with AE. Thank you to the AEA Northeast Support Group for recommending Dr. Mitchell as a presenter. Thank you to everyone for your attendance, great questions and feedback. This post includes an overview of the presentation, participant feedback […]

2021 AEA Seed Grant Final Report: Dr. Soon-Tae Lee May 27, 2022

It was May 14, 2021 when we introduced Dr. Soon-Tae Lee. Click here for last year’s post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Lee explains the outcomes of his project, Development of optimal […]

2021 AEA Seed Grant Final Report: Dr. Amaia Muñoz Lopetegi May 26, 2022

It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]

2021 AEA Community Seed Grant Final Report: Dr. Juna de Vries May 24, 2022

It was May 20, 2021 when we introduced Dr. Juna de Vries . Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. de Vries explains the outcomes of […]

Celebrating Partnership: EUROIMMUN Neuroimmunology Summit May 5, 2022

Thank you EUROIMMUN for inviting the AE Alliance family to attend the EUROIMMUN Neuroimmunology Summit. All AE Alliance Clinicians and Support Network members are invited to attend this one-day virtual summit bringing together neurologic medical experts from across the United States. The topics to be discussed include: Updated guidelines for the diagnosis of neuroimmunology conditions […]

Why Research Network Month? A Conversation with Caterri Woodrum & Meg Poe May 4, 2022

The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Grant Program in 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE. The program is funded by members, friends and supporters of the AE Alliance Community. Would you like to know the answers […]

May is AEA Research Network Month: What is it? May 2, 2022

AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? Raise funds for the 2023 Seed Grant Program. Provide you, the AEA Community a strong understanding of the huge importance of research and AE. What can you expect during May 2022? A better understanding […]

Florence Forth Virtual: How Does A First-Timer Celebrate Heroes? February 15, 2022

Thank you Meg for sharing your plans for Florence Forth Virtual and In-Person! Are you still unsure how to create your Florence Forth Virtual Event? Our new Director of Patient Support, Programs and Administration focuses on the event everyday. We asked her a few questions and found out how she’s celebrating her heroes this year. […]

Research Opportunity: Living with LGI1? Share Your Experience February 11, 2022

If you are diagnosed with LGI1 autoimmune encephalitis (LGI1) or are the caregiver of someone with LGI1, you may qualify to participate in this study conducted by Fulcrum Research Group. The goal of the study is to better understand the patient experience with LGI1 autoimmune encephalitis for the purpose of supporting potential treatments and potentially […]

Florence Forth Virtual: A How To From The Experts! #3 February 8, 2022

Thank you Lisa and Jackie for sharing your 2021 Florence Forth Virtual experiences on social media after the event and for providing expert tips for this year. What makes someone an expert? They’ve done it! The Florence Forth Virtual Event is an opportunity for you to get involved, celebrate your heroes, raise funds and awareness […]