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The Research Network funds research that has a direct impact on those affected by AE. We have two generous donors that will match any donation you make to the Research Network, up to $15,000. With your support last year, we are investing in three impactful AE studies! We will announce these grant recipients on Tuesday May […]
A great example of AE Alliance facilitating research is the recently published ‘Best Practice Recommendations for diagnosis, acute-, symptomatic-, and long-term management of Autoimmune Encephalitis’. The recommendations result from the hard work and collaboration between 68 AEA Clinicians Network members from 17 countries, initiated and led by Dr. Hesham Abboud (University Hospitals, OH). These recommendations […]
At the WED Conference we heard Dr. Tom Pollak talk about how after encephalitis you need to establish a new relationship with your body and brain. He cited research that after encephalitis, people are twice as likely to develop an anxiety disorder, nearly three times as likely to become depressed, and 114 times as likely […]
We are excited to report the first international best practice recommendations for the management of autoimmune encephalitis. The papers result from the hard work and collaboration between 68 AEA Clinicians Network members from 17 countries, initiated and led by Dr. Hesham Abboud. These recommendations will be of great value to AE patients and clinicians all […]
This Rare Disease Day, and in honor of Brain Awareness Month, HESA and AE Alliance have come together, to kick off our #AskMeAboutAE campaign, visualizing the consequences of autoimmune encephalitis. No one understands the daily struggles like you and your caregivers. You experience the consequences of AE every day. It is important to talk about […]
A study done at Texas Children’s Hospital looked at the use of Rituximab for young people and its short- or long-term adverse events, infections, or recovery time of B lymphocyte subset counts and immunoglobulin levels. The study led by Dr. McAtee involved patients younger than 21 years receiving Rituximab for more than 25 indications, including […]
Only a few more days till World Encephalitis Day! WED is a great day to raise awareness for AE. Take a photo of yourself wearing RED and post it to your social media with the #RED4WED on Monday, February 22nd. WED is also a great starting point for raising AE awareness all year round. Raising […]
We have had the pleasure of having Dr. Joe Lindley speak at our South Support Group meeting in January. Dr. Lindley is a holistic health practitioner who has been in practice for over 40 years. He is a chiropractor, acupuncturist, and applied kinesiologist who utilizes homeopathy, therapeutic nutrition, and mind-body balancing techniques with his patients. […]
We are looking for volunteers to help us manage our online Smart Patients AE community. All you need is a computer, an internet connection, and a passion for helping others affected by AE. The Smart Patients online AE community provides our AE community with a safe online platform to connect with others, from anywhere, at […]
For many AE patients and family members, time seems to stand still during the long hours spent in the hospital, infusion centers, traveling, or even at home while recovering. Listening to music is not only a great way to pass the time, but it can take you to a ‘different’ place, ease your mind and […]