AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Diagnosis of AE on clinical basis confirmed by pediatric study

Experts in the field of AE came together in 2016 to establish a set of clinical diagnostic criteria to be used early in the course of disease (Graus et al). This was developed so that patients might be diagnosed with suspected AE and treated promptly, while still awaiting test results or in areas where antibody …

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Amobi Okoye, NFL Defensive Tackle, shares a remarkable story of surviving AE

“I am a walking miracle.” These are the words of Amobi Okoye, who shared intimate details of his battle with anti-NMDA receptor encephalitis on ESPN’s Monday Night Countdown this week. Drafted by the Texans at only 19 years old, he played 6 seasons for Houston, then 2 for Chicago. He was the picture of health, …

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Make a difference in the lives of children and adults with autoimmune encephalitis today – #GivingTuesday and Amazon Smile

Make a difference in the lives of children and adults who are suffering from this rare form of brain inflammation. #GivingTuesday is today! Black Friday and Cyber Monday have passed so now please take the time to give to others in need. Your gift to the Autoimmune Encephalitis Alliance is used to help patients find …

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“Giving Tuesday” celebrated around the world on November 28

Giving Tuesday, celebrated on the Tuesday following Thanksgiving (in the US), is a global giving movement in it’s sixth year. In response to  shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving. We are always so touched at AEA by the generous spirit …

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Long-term neurobehavioral outcomes in Autoimmune Encephalitis

One of the first studies on long-term neurobehavioral outcomes in patients affected by AE will be presented by Anusha Yeshokumar, MD, during the upcoming Encephalitis Society meeting in London. This may be difficult news for some AE patients, however at times it is comforting to know that what one suffers is not unusual. The study found that …

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Lukapalooza Costume Bash to Benefit AEA

The inaugural Lukapalooza Costume Bash to benefit the AE Alliance was a great success and is in the books! Luke Shriver, an AE survivor, and his family and friends had an amazing time while sharing awareness and raising funds for the AE Alliance.  The spirit of community, courage, and the love of good music brought a …

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Dr. Josep Dalmau Receives Prestigious Award for Research in Autoimmune Brain Disease

Pioneer in the field of autoimmune encephalitis, Josep Dalmau was recently honored with the prestigious Rey Jaime I Award for medical research in a ceremony in Barcelona, Spain. His group’s achievements are in the area of autoimmune disorders that affect the brain, including the recognition of several new syndromes in autoimmune encephalitis. They are credited …

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Encephalitis Experts to Gather in London

Leading experts from around the world will descend on London for the 2017 Encephalitis Conference on December 4, sponsored by the UK-based Encephalitis Society.  The Autoimmune Encephalitis Alliance is sponsoring lunch for attendees. Professionals with backgrounds ranging from etiology and pathogenesis through to diagnosis, treatment, recovery and rehabilitation, will be on hand to share their latest …

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University of Indianapolis hosts soccer event honoring autoimmune encephalitis survivor

Rory Halbert was recognized at a University of Indianapolis women’s soccer game recently as part of TeamIMPACT, a program which allows children with serious illnesses to become an honorary member of a college team. Rory was recognized at halftime, as she is graduating from the program. The team wore green to show support for Rory’s …

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Unexpected Career Interruption – You Can Come Back Stronger from Autoimmune Encephalitis

Many thanks to Will Earnhart for sharing his inspiring story reprinted below, which first appeared in the September 2017 Alaska Bar Association quarterly newspaper. As attorneys, many of us have type “A” personalities; always striving to be successful in our careers.  We never take a step back for fear of stopping the momentum.  Almost all …

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