AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Summary article on AE published in top medical journal

The New England Journal of Medicine published an article by Josep Dalmau and Francesc Graus last month. This comprehensive article covered many aspects of the disease, including ideas about how the antibodies might cause dysfunction in the brain. Practical points of interest to lay persons included the following: AE includes a group of diseases in …

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New faces at the AE Alliance

We are pleased to welcome aboard Chris Knuth and Dave Shevlin, who have joined forces with the AE Alliance through the Non-Profit Board Consultants program at UNC Kenan-Flagler Business School. Both Chris and Dave are first year MBA students and are excited to bring their business skills and education to the table to assist the …

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AE Alliance Appoints Interim Executive Director

The Autoimmune Encephalitis Alliance is delighted to announce the hiring of Elisabeth Wharton as Interim Executive Director where she will focus on the creation and implementation of policies and procedures essential to the next steps we hope to take as an organization. “The Autoimmune Encephalitis Alliance already has a foundation of relationships with key entities …

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Incidence of AE estimated by Mayo study

Autoimmune encephalitis experts at the Mayo Clinic published the first population-based study of AE in an effort to determine the incidence of the disease. The researchers found that in the last decade approximately 1 in every 100,000 people develop AE each year. This translates into approximately 5,000 new AE cases in the US annually and …

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