AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

New faces at the AE Alliance

We are pleased to welcome aboard Chris Knuth and Dave Shevlin, who have joined forces with the AE Alliance through the Non-Profit Board Consultants program at UNC Kenan-Flagler Business School. Both Chris and Dave are first year MBA students and are excited to bring their business skills and education to the table to assist the …

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AE Alliance Appoints Interim Executive Director

The Autoimmune Encephalitis Alliance is delighted to announce the hiring of Elisabeth Wharton as Interim Executive Director where she will focus on the creation and implementation of policies and procedures essential to the next steps we hope to take as an organization. “The Autoimmune Encephalitis Alliance already has a foundation of relationships with key entities …

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Incidence of AE estimated by Mayo study

Autoimmune encephalitis experts at the Mayo Clinic published the first population-based study of AE in an effort to determine the incidence of the disease. The researchers found that in the last decade approximately 1 in every 100,000 people develop AE each year. This translates into approximately 5,000 new AE cases in the US annually and …

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AEA represented at UK-based Encephalitis Society Conference

Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the …

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Live Webinar on Autoimmune Neurology

You are Invited Live Webinar on Autoimmune Neurology January 18, 2018 2:00 pm MST The Rocky Mountain MS Center is hosting a public webinar presented by Dr. Amanda Piquet on The Emerging and Evolving Field of Neuroimmunology. This webinar is free and open to all. Dr. Piquet will cover autoimmune encephalitis, autoimmune epilepsy and Stiff-person …

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AEA executive director speaks at University of Texas Medical Branch

Autoimmune encephalitis was featured at a November 21, meeting of the Osler Club sponsored by the John P. McGovern Academy of Oslerian Medicine at the University of Texas Medical Branch’s  (UTMB). Following a sit-down dinner, the 48 attendees, many of whom were physicians and physicians in training, filled the room to capacity for the program …

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