AEA Research Network

Over the past 20 years, important advances have improved our understanding of diagnosis, treatment and underlying causes of AE. The number of new publications has increased dramatically in the past few years, illustrating the explosive growth in research into this rare disease.

Funding for scientific research typically comes from three main sources: government agencies, such as the US National Institutes of Health (NIH), pharmaceutical companies, and private funders including family foundations, nonprofits and philanthropists. The bulk of the funding comes from pharmaceutical companies. However, nonprofits and their communities, are in a unique position to fill funding gaps and advance therapy.

For instance, the Michael J Fox Foundation has supported 1,902 studies to date in the Parkinson disease field, ranging from basic to clinical research. By supporting innovative pilot studies, investing in proof-of-principal/early failure studies in drug discovery, educating their patient communities, and developing a centralized registry, they have set the stage for smaller nonprofits to follow suit by strategically placing their funds where they are needed the most.

How to change the course of AE

Patients and caregivers have unique perspectives on the benefits and risks of potential new medicines and are able to provide valuable insights on their disease, available treatment options, and their outcomes. Patients and caregivers play an integral part in advancing AE research. Support the Research Network, you will not only invest in research but become an active part of it.

Together, we can change the course of AE.


Support here


The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Program 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE, and is funded by members of the AEA Research Network.

The 2022 AEA Community Seed Grant Winners


Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study

Dr. Matteo Gastaldi – C. Mondino National Institute of Neurology Foundation, IRCCS – Pavia, Italy

Meet Dr. Matteo Gastaldi


Predictors of Cognitive Outcomes in Children with Anti-NMDA Receptor Encephalitis

Dr. Leigh Sepeta & Dr. Elizabeth Wells – Children’s National Hospital – Washington DC, USA

Meet Dr. Leigh Sepeta & Dr. Elizabeth Wells

The 2021 AEA Community Seed Grant Winners


Development of optimal clinical approaches in seronegative autoimmune encephalitis

Soon-Tae Lee, MD, PhD  – Seoul National University Hospital – South-Korea


Patient Reported Outcomes while Manipulating the Immune System in autoimmune Encephalitis

Juna de Vries, MD, PhD – Erasmus University – The Netherlands


Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications

Amaia Muñoz Lopetegi, MD – Hospital Clinic of Barcelona – Spain


2020 Launch Day Webinars

Resource Library