Honoring Ed Arditte – The AEA Ed Arditte Community Seed Grant Program January 26, 2024

Edward C (Ed) Arditte served as board member, Treasurer and was Chairman of the Autoimmune Encephalitis Alliance at the time of his passing in 2023.  Ed was instrumental in the formation of the AE “Medical Advisory Board” as well as the development of the “Community Seed Grant” program.  We are proud to name the program […]

AEA Community Seed Grant Program – 2023 Recipients August 15, 2023

The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]

Welcome, Meg Poe! January 5, 2022

The AE Alliance is pleased to announce the arrival of Meg Poe, our new Director of Patient Support, Programs, and Administration. Meg started her work with the Alliance in December and has been busy immersing herself in all things AE over the last few weeks! Meg has extensive training and program development experience, which will […]

The June Newsletter June 11, 2021

Just in time for the weekend! We are excited to share the June edition of our AEA newsletter, featuring Q&A with Dr. Mooneyham about the use of psychiatric medications in AE, an in-depth look at our new website, an inspiring AE journey, and much more!  Click here to read the newsletter.

Check out our NEW website! April 9, 2021

We are excited to announce the launch of our new Autoimmune Encephalitis Alliance website. Your journey with autoimmune encephalitis as a patient or a caregiver inspired the structure of this site.  It contains helpful information and resources to support you every step of the way. As you browse this site: Learn more about the different Types of […]

Thank you, Alexander! March 12, 2021

We would like to thank Alexander Berman for organizing a fundraiser for AE Alliance in honor of his Bar Mitzvah. Alexander raised an amazing total of $10,359.29 that will be directed towards pediatric AE research. Alexander was diagnosed with seronegative autoimmune encephalitis when he was 11 years old. Seeing how AE has affected his life in such […]

AEA Community 2021 Seed Grant Program December 10, 2020

The AE Alliance is pleased to announce its inauguration of the AEA Community 2021 Seed Grant Program to support research focused on the diagnosis, management, and outcomes of individuals with AE. We will be awarding multiple grants of $10,000 in 2021. As the name implies, this program is a true community effort. In May 2020 […]

Building Bridges November 10, 2020

AE Alliance and Hashimoto’s Encephalopathy SREAT Alliance (HESA) are excited to announce the virtual conference: ‘Autoimmune Encephalitis: Building Bridges.’ The aim of this conference is to enhance patient care and improve outcomes for those affected by AE, by promoting a multidisciplinary approach to diagnosis, treatment, and recovery. ‘Building Bridges’, is a place to exchange ideas, […]

World Encephalitis Day Conference 2021 October 22, 2020

Mark your calendar! The World Encephalitis Day Alliance will be hosting the World Encephalitis Day Conference on Saturday February 20th, 2021. This will be a virtual conference, so anyone, anywhere can participate. We are literally taking you across the globe, with speakers from Australia, Europe, and the United States. Our Keynote Speakers are Prof. Tom […]

AE on the Hill September 12, 2020

On Tuesday October 6, we launch an exciting new Advocacy program: AE on the Hill  Our long-term goal for the ‘AE on the Hill’ program is bold, empowering the AE community to advocate for themselves and their families at the local, state, and federal levels to improve the lives of all those affected by autoimmune […]