News
The AE Alliance is pleased to announce the arrival of Meg Poe, our new Director of Patient Support, Programs, and Administration. Meg started her work with the Alliance in December and has been busy immersing herself in all things AE over the last few weeks! Meg has extensive training and program development experience, which will […]
Just in time for the weekend! We are excited to share the June edition of our AEA newsletter, featuring Q&A with Dr. Mooneyham about the use of psychiatric medications in AE, an in-depth look at our new website, an inspiring AE journey, and much more! Click here to read the newsletter.
We are excited to announce the launch of our new Autoimmune Encephalitis Alliance website. Your journey with autoimmune encephalitis as a patient or a caregiver inspired the structure of this site. It contains helpful information and resources to support you every step of the way. As you browse this site: Learn more about the different Types of […]
We would like to thank Alexander Berman for organizing a fundraiser for AE Alliance in honor of his Bar Mitzvah. Alexander raised an amazing total of $10,359.29 that will be directed towards pediatric AE research. Alexander was diagnosed with seronegative autoimmune encephalitis when he was 11 years old. Seeing how AE has affected his life in such […]
The AE Alliance is pleased to announce its inauguration of the AEA Community 2021 Seed Grant Program to support research focused on the diagnosis, management, and outcomes of individuals with AE. We will be awarding multiple grants of $10,000 in 2021. As the name implies, this program is a true community effort. In May 2020 […]
AE Alliance and Hashimoto’s Encephalopathy SREAT Alliance (HESA) are excited to announce the virtual conference: ‘Autoimmune Encephalitis: Building Bridges.’ The aim of this conference is to enhance patient care and improve outcomes for those affected by AE, by promoting a multidisciplinary approach to diagnosis, treatment, and recovery. ‘Building Bridges’, is a place to exchange ideas, […]
Mark your calendar! The World Encephalitis Day Alliance will be hosting the World Encephalitis Day Conference on Saturday February 20th, 2021. This will be a virtual conference, so anyone, anywhere can participate. We are literally taking you across the globe, with speakers from Australia, Europe, and the United States. Our Keynote Speakers are Prof. Tom […]
On Tuesday October 6, we launch an exciting new Advocacy program: AE on the Hill Our long-term goal for the ‘AE on the Hill’ program is bold, empowering the AE community to advocate for themselves and their families at the local, state, and federal levels to improve the lives of all those affected by autoimmune […]
#GivingTuesdayNow on May 5, 2020, is a global day of generosity and unity, a day to come together and give back in response to the unprecedented need caused by COVID-19. AE Alliance will participate in Giving Tuesday Now and launch the AEA Research Network with webinars by Dr. Sean Pittock (Mayo Clinic) and Dr. Stanley […]
The AE Alliance has accomplished so much with a small staff and a dedicated board. Yet there is so much to be done to change the trajectory of this disease – to ensure rapid diagnosis, appropriate treatment, and advanced research so that no one faces this disease alone. To achieve this mission requires taking the […]