Autoimmune Encephalitis
Whether you are living with AE, are a caregiver, family member, friend, physician, researcher, Board Member, MAB Member, program partner or sponsor or this is your first time ever to the Autoimmune Encephalitis website, we are excited you are here and ready to develop an attitude of gratitude! This program is inspired by a year […]
Dr. Juliette Brenner (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2024 AEA Community Seed Grant for the investigation of Validation of a new (patient-reported) outcome measure for encephalitis. Learn more about her research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have […]
The following is from The Lancet Neurology and is a response from Francesc Graus and Josep Dalmau first published in Sept. 2016. We thank Silvia Morbelli and colleagues for their comments on the role of brain 18fluorodeoxyglucose (18F-FDG) PET imaging in the management of autoimmune encephalitis. We agree about the potential use of 18F-FDG-PET in the diagnosis and evaluation […]
Roughly 70 researchers, nurses, neuropsychologists, neurologists, residents, fellows, patient advocates, patients, and families attended a “Dinner and Discussion on the Future of Autoimmune Neurology” on the evening of 4/27/17, held at the Richard Simches Research Center at Massachusetts General Hospital (MGH). Organized by Dr. Jenny Linnoila, a neurologist at Massachusetts General Hospital, the overall theme […]
Tenga en cuenta: usamos Google translate para la traducción de este blog, originalmente en el sitio web de la Alianza de Encefalitis Autoinmune. Nos disculpamos si hay algún error. Los espectadores de todo el país vieron el domingo, 27 de agosto, cuando tres damas (sobrevivientes) y sus familias compartieron historias de sus tumultuosas experiencias con […]
Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the […]
We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]
The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]
The Autoimmune Encephalitis Alliance, along with Children’s National Health System, and the Childhood Arthritis and Rheumatology Research Alliance, co-sponsored the first International Pediatric Autoimmune Encephalitis Treatment Consensus Meeting at the Carnegie Endowment for International Peace in Washington, DC, on November 14. “The AE Alliance was honored to help bring many of the world’s leading experts […]
Duke Health recently posted an article by Carol Habers that follows the four-year journey to an autoimmmune encephalitis diagnosis of Lucas Quinones-Reed. “Reed, Quinones, and Lucas met with Dr. Heather Van Mater, MD, a pediatric rheumatologist and Dr. William Gallentine, DO, a pediatric neurologist. ‘They came in with a box full of medical records,’ said Van Mater. Immediately, she saw […]