News
The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]
The AE Alliance and Medical Advisory Board (MAB) are excited to announce our new AEA Monthly Didactic + Case Discussion series. The AE Alliance hosted its inaugural Challenging Case Conference in February 2023. Every alternating month, the MAB and Clinicians Network members were invited to deliberate on challenging cases and explore innovative diagnostic and treatment […]
The AE Alliance is pleased to announce Dr. Stanley Naides as Chairman of the Board of Directors, effective January 1, 2024. Stanley joined the AEA Board in July 2022, but his involvement with the Alliance spans several years prior. In his capacity as the Director of Scientific Affairs at EUROIMMUN US, Stanley was instrumental in […]
Edward C (Ed) Arditte served as board member, Treasurer and was Chairman of the Autoimmune Encephalitis Alliance at the time of his passing in 2023. Ed was instrumental in the formation of the AE “Medical Advisory Board” as well as the development of the “Community Seed Grant” program. We are proud to name the program […]
The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]
The AE Alliance is pleased to announce the arrival of Meg Poe, our new Director of Patient Support, Programs, and Administration. Meg started her work with the Alliance in December and has been busy immersing herself in all things AE over the last few weeks! Meg has extensive training and program development experience, which will […]
Just in time for the weekend! We are excited to share the June edition of our AEA newsletter, featuring Q&A with Dr. Mooneyham about the use of psychiatric medications in AE, an in-depth look at our new website, an inspiring AE journey, and much more! Click here to read the newsletter.
We are excited to announce the launch of our new Autoimmune Encephalitis Alliance website. Your journey with autoimmune encephalitis as a patient or a caregiver inspired the structure of this site. It contains helpful information and resources to support you every step of the way. As you browse this site: Learn more about the different Types of […]
We would like to thank Alexander Berman for organizing a fundraiser for AE Alliance in honor of his Bar Mitzvah. Alexander raised an amazing total of $10,359.29 that will be directed towards pediatric AE research. Alexander was diagnosed with seronegative autoimmune encephalitis when he was 11 years old. Seeing how AE has affected his life in such […]
The AE Alliance is pleased to announce its inauguration of the AEA Community 2021 Seed Grant Program to support research focused on the diagnosis, management, and outcomes of individuals with AE. We will be awarding multiple grants of $10,000 in 2021. As the name implies, this program is a true community effort. In May 2020 […]