Check out our NEW website!

April 9, 2021

We are excited to announce the launch of our new Autoimmune Encephalitis Alliance website. Your journey with autoimmune encephalitis as a patient or a caregiver inspired the structure of this site.  It contains helpful information and resources to support you every step of the way.

As you browse this site:

  • Learn more about the different Types of AE – reviewed by AE experts
  • Check out our Resource Filter – this online AE library contains more than 600 resources
  • Download the Recovery Toolkit – practical information for when you leave the hospital
  • Develop healthy lifestyles in Living with AE – rebuilding strength, assessing lifestyle, and building consistent and supportive habits to live productive and healthy lives
  • Make A Difference – find multiple options to get involved and raise awareness of AE

Our new website was made possible by two exceptional and generous couples, Daniel and Helen Egger and Bob and Suzi Given. They know first-hand the significant impact of AE in the lives of those impacted by it. Thanks to their support and encouragement, we can provide you with even more critical AE information than previously available through our site.  These families hold a special place of honor with the team at AE Alliance. Their commitment to the AE community is unsurpassed.

We wish to thank the following physicians for reviewing and contributing to parts of our website, ensuring you have access to the most up-to-date information on diagnosis, treatment, and outcomes for AE:

Dr. Hesham Abboud, Dr. Morten Blaabjerg, Dr. Tania Celluci, Dr. Sarah Crisp, Dr. Divyanshu Dubey, Dr. Jeffrey Gelfand, Dr. Sarosh Irani, Dr. Sergio Muñiz-Castrillo, Dr. Soon-Tae Lee,  Dr. Myrna Rosenfeld , Dr. Heather Van Mater, Dr. Anusha Yeshokumar.

We also extend a heartfelt thank you to Lisa Lauter and Alanna Yee for closely collaborating with us on the Recovery Toolkit. This kit contains first-hand and practical information for newly discharged hospital patients.

Lastly, we would like to extend a special thanks to our Program Director, Kimberley de Haseth, for her tireless efforts in managing this critical website upgrade.  Kimberley has invested countless hours in ensuring the information we are presenting meets the many needs of our patients and physicians alike.  She, along with our team at R+M Agency, demonstrated extraordinary dedication to this project.

A website is a living, changing entity that must be constantly updated and maintained to ensure trustworthy information and guidance to our community. We will be adding even more new content and videos in the upcoming weeks, so please be on the lookout. And if you have suggestions or topics you would like to learn more about, do not hesitate to let us know. We welcome your feedback!

Caterri Woodrum, Executive Director & CEO