News

Welcome, Meg Poe! January 5, 2022

The AE Alliance is pleased to announce the arrival of Meg Poe, our new Director of Patient Support, Programs, and Administration. Meg started her work with the Alliance in December and has been busy immersing herself in all things AE over the last few weeks! Meg has extensive training and program development experience, which will […]

AE Alliance Appoints Interim Executive Director February 15, 2018

The Autoimmune Encephalitis Alliance is delighted to announce the hiring of Elisabeth Wharton as Interim Executive Director where she will focus on the creation and implementation of policies and procedures essential to the next steps we hope to take as an organization. “The Autoimmune Encephalitis Alliance already has a foundation of relationships with key entities […]

Smart Patients online AE community September 5, 2018

We have just partnered with Smart Patients, to create an online support community for patients and caregivers affected by AE. We receive so many questions on diagnosis, treatment and recovery, we thought we could help more people by bringing them together in a safe online community. Here you can ask questions, share experiences, gain insight […]

Raising Awareness for Autoimmune Encephalitis #WED2019 February 5, 2019

Seventeen days till World Encephalitis Day. Let’s all raise awareness for Autoimmune Encephalitis, because it is still too often people with AE go undiagnosed or misdiagnosed. The AE Alliance has created an infographic to make it easy to spread AE awareness. You can print it and hand it out to your friends, neighbors and coworkers. […]

First AEA Support Group Meeting in NY November 18, 2019

  We are excited to announce the first AEA ‘in-person’ Support Group meeting on December 7 at the Port Washington Library located at 1 Library Drive, Port Washington, NY 11050 from 2 pm – 4:30 pm.    The Support Group Leader, Sydney, has organized for Melissa Jensen, M.A., CCC-SLP of Transitions of Long Island to join us as our guest practitioner to discuss cognitive […]

OHIO – AEA Support Group Meeting December 5, 2019

We are excited to announce the first AEA Support Group Meeting in Ohio, the first of many to come! This Support Group brings together patients and caregivers that have been affected with Autoimmune Encephalitis. The support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information […]

Announcing New Leadership December 14, 2019

The AE Alliance has accomplished so much with a small staff and a dedicated board. Yet there is so much to be done to change the trajectory of this disease – to ensure rapid diagnosis, appropriate treatment, and advanced research so that no one faces this disease alone. To achieve this mission requires taking the […]

The AEA Research Network April 28, 2020

#GivingTuesdayNow on May 5, 2020, is a global day of generosity and unity, a day to come together and give back in response to the unprecedented need caused by COVID-19. AE Alliance will participate in Giving Tuesday Now and launch the AEA Research Network with webinars by Dr. Sean Pittock (Mayo Clinic) and Dr. Stanley […]

AE on the Hill September 12, 2020

On Tuesday October 6, we launch an exciting new Advocacy program: AE on the Hill  Our long-term goal for the ‘AE on the Hill’ program is bold, empowering the AE community to advocate for themselves and their families at the local, state, and federal levels to improve the lives of all those affected by autoimmune […]

World Encephalitis Day Conference 2021 October 22, 2020

Mark your calendar! The World Encephalitis Day Alliance will be hosting the World Encephalitis Day Conference on Saturday February 20th, 2021. This will be a virtual conference, so anyone, anywhere can participate. We are literally taking you across the globe, with speakers from Australia, Europe, and the United States. Our Keynote Speakers are Prof. Tom […]