AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Rebecca’s Mom

I remember thinking when this year began that things were finally coming together for the Scheinert girls, who have had no shortage of ups and downs. My mom, two sisters, and I have been through it all together. I was diagnosed with Juvenile Rheumatoid Arthritis before I could walk, and a variety of other autoimmune …

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Autoimmune Encephalitis Survival Story

In the Summer of 2017, I was a 46-year old mom of two young children, working part time as an attorney, just returning from a weekend away with my girlfriends. I was having difficulty sleeping, but often had insomnia this time of year.  My thoughts were becoming jumbled and weren’t making sense.  Little did I …

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Physicians study use of mycophenolate mofetil in children

Physicians from centers in four countries collaborated on a recent retrospective study concerning the use of mycophenolate mofetil (Cell Cept) in autoimmune/immune-mediated diseases of the central nervous system in children. A large percentage of the study population were children with autoimmune encephalitis. The authors were interested in the safety of the medication and whether children …

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Autoimmune Encephalitis: The bridge between Neurology and Psychiatry

The AE Alliance is excited to announce a groundbreaking symposium titled: “Autoimmune Encephalitis: A Bridge Between Neurology and Psychiatry.” HESA (Hashimoto’s Encephalopathy SREAT Alliance) is the initiator and lead organizer of this symposium to be held on April 6, 2019 at Weill Cornell Medical School, Cornell University in New York, NY. The April 2019 symposium for doctors …

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Functional MRI sheds new light on AE

New methods of studying the brain have been emerging in recent decades. One such method is the use of functional MRI, which is a way to measure how the brain works as opposed to regular MRI, which looks at structure. This week an exciting new research study was released by the Autoimmune Neurology Group in …

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Smart Patients online AE community

We have just partnered with Smart Patients, to create an online support community for patients and caregivers affected by AE. We receive so many questions on diagnosis, treatment and recovery, we thought we could help more people by bringing them together in a safe online community. Here you can ask questions, share experiences, gain insight …

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