Blog

Many thanks to Dr. Maarten J Titulaer, MD, PhD, Associate Professor of Neurology, Erasmus University Medical Center, Rotterdam, the Netherlands, AEA Medical Advisory Board Member for speaking at our January 2025 AEA Provider Monthly Education Series and presenting Anti-NMDA Receptor Encephalitis. Since the initial description of anti-NMDAR encephalitis in 2005, we have been able to determine the full […]

It was August 15, 2023 when we introduced Dr. Robin van Steenhoven.  Click here for the introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2023 AEA Community Seed Grant Final Report, Dr. van Steenhoven explains the outcomes of his project, the Seronegative […]

Many thanks to Dr. Amanda Piquet, Board of Directors & Medical Advisory Board Member, Autoimmune Encephalitis Alliance for speaking at our November 2024 AEA Provider Monthly Education Series and presenting CAR T Therapy for Autoimmune Disease. We discussed the background of the CAR T therapy and its more recent use in  autoimmune disease. We also discussed current examples […]

Dr. Juliette Brenner (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2024 AEA Community Seed Grant for the investigation of Validation of a new (patient-reported) outcome measure for encephalitis. Learn more about her research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have […]

We look forward to Dr. Soon-Tae Lee joining our February 2025 AEA Provider Monthly Education Series and presenting Seronegative Autoimmune Encephalitis and crytogenic new-onset refractory status epilepticus (NORSE). This session is scheduled for February 11 at 7:00 PM Eastern US Time and offered via Zoom. Members of the AEA Medical Advisory Board and Clinicians Network […]

Many thanks to Dr. Eoin Flanagan joining our December 2024 AEA Provider Monthly Education Series and presenting Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD). Dr. Flanagan’s session achieves the following: Review relevant references for the session: 1. Banwell B, Bennett JL, Marignier R, Kim HJ, Brilot F, Flanagan EP, Ramanathan S, Waters P, Tenembaum S, Graves JS, […]

Dr. Julien Hebert (University of Toronto, Toronto, Ontario, Canada) was awarded a 2024 AEA Community Seed Grant for the investigation of Postacute Management of Anti-Seizure Medications in Autoimmune Encephalitis-Associated Epilepsy. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have been […]

Many thanks to Stanley J. Naides, MD, FACP, FACR, Chair, Board of Directors, Autoimmune Encephalitis Alliance as our speaker for the September 2024 AEA Provider Monthly Didactic + Case Discussion series, The Role of the Laboratory in Autoimmune Neurology. The identification of pathological autoantibodies to neural targets has aided diagnosis and prognosis in patients with autoimmune […]

Dr. J. Nicholas Brenton (The Rector and Visitors of the University of Virginia, Charlottesville, VA, USA) was awarded a 2024 AEA Community Seed Grant for the investigation of Capacity, Endurance, and Physical Activity in Children with MOG+ Encephalitis. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the […]

Many thanks to Dr. Jerome Graber for the August 2024 session of our AEA Provider Monthly Education Series, “Paraneoplastic” neurologic disorders: A case-based review. The session included general principles of diagnosis and treatment for paraneoplastic and autoimmune neurologic disorders and their mimics. NOTE: Case presentation & discussion occurs throughout the presentation and is edited out. The edits […]