Blog

Please join us on Saturday, September 18th, for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. Check out the schedule!  When: Saturday, September 18, 11 – 5 PM EST   […]

We are excited to report the first International Consensus Recommendations for the treatment of pediatric NMDAR Antibody Encephalitis. The paper results from the hard work, dedication, and collaboration between 27 international AE experts, led by Dr. Margherita Nosadini and Dr. Russell Dale. These treatment recommendations will be of great value to children affected by AE […]

Refuel You is a 10-week health and wellness program to help rejuvenate you following your AE journey. This online program incorporates movement, mindfulness, group support, and health coaching.  We have aimed this first cohort at our caregivers because we all know AE affects the whole family. Normally this program would cost $300 per person for ten […]

In 2018 Lisa, Marie’s mom, shared her daughter’s journey with AE on our website. Today, she is happy to share an exciting update.  Marie’s has come a long way from her hospital stay in 2018 with the medication changes. This has made a big difference in 2019, the medication took about a year to adjust […]

Hashimoto encephalopathy (HE) is a rare disorder characterized by impaired brain function. The exact cause is unknown, but experts believe it to be an immune-mediated disorder or a disorder in which inflammation results from abnormal functioning of the immune system. People with HE have antithyroid antibodies in their bodies. However, it is unclear whether these […]

Dr. Amaia Muñoz Lopetegi (Hospital Clinic of Barcelona – Spain) has been awarded the AEA Community Seed Grant to investigate the Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Seed Grant, can you tell us […]

Dr. Juna de Vries (Erasmus University – The Netherlands) has been awarded the AEA Community Seed Grant to investigate the Patient Reported Outcomes while Manipulating the Immune System in autoimmune Encephalitis. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Community Seed Grant, can you tell […]

There are 7,000 rare diseases that affect millions of people. In the USAA disease is considered rare if fewer than 200,000 people are affected by it. Because these diseases are rare, a lot is still unknown. This creates problems in the management of rare diseases, like autoimmune encephalitis, because it leads to misdiagnosis, unmet treatment, […]

Dr. Soon-Tae Lee (Seoul National University Hospital – South-Korea) has been awarded the AEA Community Seed Grant to investigate the Development of optimal clinical approaches in seronegative autoimmune encephalitis. Learn more about his study and how this will affect those affected with seronegative autoimmune encephalitis (AE). You have been awarded the AEA Community Seed Grant, can […]

Over the past 20 years, significant advances have improved our understanding of diagnosis, treatment, and underlying causes of AE. The number of new publications has increased dramatically in the past few years. And here, we will share some recent advances made in the area of novel therapeutics and biomarker discovery. Sell at al., Autoimmune encephalitis: […]