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Florence Forth Virtual: A How To From The Experts! #1 January 27, 2022

Thank you Team Fledderjohn for sharing your 2021 Florence Forth Virtual experience! We decided the best way for you to understand what it means to participate in the Florence Forth Virtual event is to ask the experts. What makes someone an expert? They’ve done it! Q1 What did you enjoy about the 2021 Virtual Florence […]

2022 AEA Community Seed Grant Program is now open! January 21, 2022

Funded by the Autoimmune Encephalitis Alliance, Inc. (AE Alliance) IMPORTANT DATES Application Deadline: May 2, 2022 Award Notification: Early June 2022 The AE Alliance is pleased to announce the call for applications to our second annual AEA Community Seed grant program to support research focused on the diagnosis, management, and outcomes of individuals with autoimmune […]

BREAKING NEWS: The ExTINGUISH trial will start recruitment in January 2022! December 1, 2021

We are excited to report that the ExTINGUISH Trial will start recruitment in January 2022. This trial is a Phase-2b, Double-Blind, Randomized Controlled Trial to Evaluate the Activity and Safety of Inebilizumab in Anti-NMDA Receptor (NMDAR) Encephalitis and Assess Markers of Disease. This trial is the result of the dedication and hard work of Dr. […]

What are the most effective treatments for NMDAR-antibody encephalitis? September 21, 2021

Use and Safety of Immunotherapeutic Management of N-Methyl-d-Aspartate Receptor Antibody Encephalitis: A Meta-analysis This paper results from the hard work, dedication, and collaboration between the International NMDAR-antibody Encephalitis Consensus Group and other experts in the field, led by Dr. Margherita Nosadini, Dr. Michael Eyre, and Dr. Ming Lim. The paper aims to answer what treatments are […]

Partner Focus: EUROIMMUN September 3, 2021

AE Alliance is proud to partner with EUROIMMUN again on the AEA Family Day. Just like last year, EUROIMMUN will be handing out Service Awards for a patient/caregiver and doctor/researcher that had a significant impact on the lives of those affected with AE. EUROIMMUN, whose autoantibody testing panels help patients get an accurate diagnosis, is […]

The importance of complementary therapies in managing Autoimmune Encephalitis August 27, 2021

There are over 100 known autoimmune diseases. Depending on the autoimmune condition, medications may be prescribed to manage symptoms and/or prevent disease progression by suppressing the immune system. The same is true for Autoimmune Encephalitis (AE), starting with first-line immunotherapy (IVIG/PE/steroids) and escalating to second-and third-line therapies, like Rituximab, Cyclophosphamide, and Tocilizumab if first-line therapies […]

AEA Family Day Update August 23, 2021

We are excited to have so many people signed up for the AEA Family Day already. It promises to be a great day of sharing, learning, and doing!  The workshops ‘Managing Cognitive Challenges’, Art Therapy and Mindfulness have reached capacity and are no longer available. However, you can still sign up for Journaling. These workshops […]

Meet Kayla, our Online Engagement Volunteer! August 10, 2021

We are excited to share with you that Kayla Storr will be joining AE Alliance as our Online Engagement Volunteer. She will support the Smart Patients AE online community members.   Meet Kayla! ‘Hi my name is Kayla and I was diagnosed with AE five years ago. I was a senior in high school getting ready for […]

Register Now for the Virtual AEA Family Day August 6, 2021

Please join us on Saturday, September 18th, for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. Check out the schedule!  When: Saturday, September 18, 11 – 5 PM EST   […]

International Consensus Recommendations for the Treatment of Pediatric NMDAR Antibody Encephalitis July 30, 2021

We are excited to report the first International Consensus Recommendations for the treatment of pediatric NMDAR Antibody Encephalitis. The paper results from the hard work, dedication, and collaboration between 27 international AE experts, led by Dr. Margherita Nosadini and Dr. Russell Dale. These treatment recommendations will be of great value to children affected by AE […]