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The importance of complementary therapies in managing Autoimmune Encephalitis August 27, 2021

There are over 100 known autoimmune diseases. Depending on the autoimmune condition, medications may be prescribed to manage symptoms and/or prevent disease progression by suppressing the immune system. The same is true for Autoimmune Encephalitis (AE), starting with first-line immunotherapy (IVIG/PE/steroids) and escalating to second-and third-line therapies, like Rituximab, Cyclophosphamide, and Tocilizumab if first-line therapies […]

AEA Family Day Update August 23, 2021

We are excited to have so many people signed up for the AEA Family Day already. It promises to be a great day of sharing, learning, and doing!  The workshops ‘Managing Cognitive Challenges’, Art Therapy and Mindfulness have reached capacity and are no longer available. However, you can still sign up for Journaling. These workshops […]

Meet Kayla, our Online Engagement Volunteer! August 10, 2021

We are excited to share with you that Kayla Storr will be joining AE Alliance as our Online Engagement Volunteer. She will support the Smart Patients AE online community members.   Meet Kayla! ‘Hi my name is Kayla and I was diagnosed with AE five years ago. I was a senior in high school getting ready for […]

Register Now for the Virtual AEA Family Day August 6, 2021

Please join us on Saturday, September 18th, for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. Check out the schedule!  When: Saturday, September 18, 11 – 5 PM EST   […]

International Consensus Recommendations for the Treatment of Pediatric NMDAR Antibody Encephalitis July 30, 2021

We are excited to report the first International Consensus Recommendations for the treatment of pediatric NMDAR Antibody Encephalitis. The paper results from the hard work, dedication, and collaboration between 27 international AE experts, led by Dr. Margherita Nosadini and Dr. Russell Dale. These treatment recommendations will be of great value to children affected by AE […]

Refuel You July 26, 2021

Refuel You is a 10-week health and wellness program to help rejuvenate you following your AE journey. This online program incorporates movement, mindfulness, group support, and health coaching.  We have aimed this first cohort at our caregivers because we all know AE affects the whole family. Normally this program would cost $300 per person for ten […]

Good News! June 22, 2021

In 2018 Lisa, Marie’s mom, shared her daughter’s journey with AE on our website. Today, she is happy to share an exciting update.  Marie’s has come a long way from her hospital stay in 2018 with the medication changes. This has made a big difference in 2019, the medication took about a year to adjust […]

Brain dysfunction and thyroid antibodies: autoimmune diagnosis and misdiagnosis June 18, 2021

Hashimoto encephalopathy (HE) is a rare disorder characterized by impaired brain function. The exact cause is unknown, but experts believe it to be an immune-mediated disorder or a disorder in which inflammation results from abnormal functioning of the immune system. People with HE have antithyroid antibodies in their bodies. However, it is unclear whether these […]

Meet Dr. Amaia Muñoz Lopetegi! May 26, 2021

Dr. Amaia Muñoz Lopetegi (Hospital Clinic of Barcelona – Spain) has been awarded the AEA Community Seed Grant to investigate the Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Seed Grant, can you tell us […]

Meet Dr. Juna de Vries! May 20, 2021

Dr. Juna de Vries (Erasmus University – The Netherlands) has been awarded the AEA Community Seed Grant to investigate the Patient Reported Outcomes while Manipulating the Immune System in autoimmune Encephalitis. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Community Seed Grant, can you tell […]