Autoimmune Encephalitis
Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September […]
Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Cemcat, Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, […]
Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is […]
We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]
Shawn Kregan contacted the Autoimmune Encephalitis Alliance in August of 2016, and we have been connecting regularly ever since. He has put together a voice memo to aid and inspire those who struggle with AE. Shawn wants everyone to know that sharing experiences gives others confidence and strength, so don’t be afraid to tell people […]
The following was sent to us by Erin Wicke Dankert to honor her mother Rita. “My family has been very open with my Mom’s experience in hopes of helping others with this condition.” AEA is so appreciative of this personal sharing by all who loved Rita. In March, my family suffered the devastating loss of […]
Duke Health recently posted an article by Carol Habers that follows the four-year journey to an autoimmmune encephalitis diagnosis of Lucas Quinones-Reed. “Reed, Quinones, and Lucas met with Dr. Heather Van Mater, MD, a pediatric rheumatologist and Dr. William Gallentine, DO, a pediatric neurologist. ‘They came in with a box full of medical records,’ said Van Mater. Immediately, she saw […]
Roughly 70 researchers, nurses, neuropsychologists, neurologists, residents, fellows, patient advocates, patients, and families attended a “Dinner and Discussion on the Future of Autoimmune Neurology” on the evening of 4/27/17, held at the Richard Simches Research Center at Massachusetts General Hospital (MGH). Organized by Dr. Jenny Linnoila, a neurologist at Massachusetts General Hospital, the overall theme […]
Medpage Today reports that the FDA has approved the biologic drug ocrelizumab (Ocrevus) for treatment of relapsing forms of multiple sclerosis. Ocrelizumab is an anti-CD20 monoclonal antibody targeting B cells which is the same mechanism of action as rituximab (Rituxan), which some earlier studies found to be effective against both relapsing-remitting and progressive MS. Off-label use of rituximab […]