Autoimmune Encephalitis
In her New York Times bestseller Brain on Fire: My Month of Madness, journalist Susannah Cahalan describes dreadful psychological experiences associated with her eventual diagnosis of autoimmune encephalitis. Compared with other forms of autoimmune disease and other types of encephalitis, knowledge about this particular diagnostic entity seems to be unfamiliar to most physicians; the medical […]
Suzi and Bob Given have contributed $25,000 to establish a matching campaign for the Autoimmune Encephalitis Alliance. This means donations we receive will be matched 1:1 up to $25K, by the Given’s gift. Bob is recovering from autoimmune encephalitis and states, “I directly benefited from the work being done by AEA, as have so many others. This donation […]
The Autoimmune Encephalitis Alliance, along with Children’s National Health System, and the Childhood Arthritis and Rheumatology Research Alliance, co-sponsored the first International Pediatric Autoimmune Encephalitis Treatment Consensus Meeting at the Carnegie Endowment for International Peace in Washington, DC, on November 14. “The AE Alliance was honored to help bring many of the world’s leading experts […]
The following is from The Lancet Neurology and is a response from Francesc Graus and Josep Dalmau first published in Sept. 2016. We thank Silvia Morbelli and colleagues for their comments on the role of brain 18fluorodeoxyglucose (18F-FDG) PET imaging in the management of autoimmune encephalitis. We agree about the potential use of 18F-FDG-PET in the diagnosis and evaluation […]
The following was reported by Stephanie Innes at the Arizona Daily Star. The opening of the new Children’s Postinfectious Autoimmune Encephalopathy Center in Tucson marks a new era of pediatric research for the University of Arizona, UA president Ann Weaver Hart said Tuesday during an opening event held at Banner-University Medical Center Tucson. The disorders hit […]
As difficult as diagnosis and treatment are for autoimmune encephalitis, fortunately for the community of patients, families, and caregivers, rapid progress has been made within only a decade. A group of physicians in Oxford, England has published a review for the journal Neuropharmacology that summarizes the various types of AE, including a classification of syndromes, […]
We are encouraged that researchers at Columbia University Medical Center in NY, NY recently published a review article, bringing together many facets of research on how antibodies and other types of immune cells are able to cross the blood-brain barrier and gain access to the brain, causing autoimmune encephalitis. They stated that these routes of […]
Tenga en cuenta: usamos Google translate para la traducción de este blog, originalmente en el sitio web de la Alianza de Encefalitis Autoinmune. Nos disculpamos si hay algún error. Los espectadores de todo el país vieron el domingo, 27 de agosto, cuando tres damas (sobrevivientes) y sus familias compartieron historias de sus tumultuosas experiencias con […]
Rebecca Katz, a nationally known nutritionist, chef, and speaker has published “The Healthy Mind Cookbook.” Rebecca has collected numerous accolades, including having worked with the nation’s top wellness experts, as well as being featured in The Washington Post, The Atlantic, the Oprah Show, and NPR. She has sorted through the large and growing volume of […]
Viewers nationwide watched on Sunday, August 27, as three ladies (survivors!) and their families shared stories of their tumultuous experiences with AE on the new HLN series “Something’s Killing Me.” On Monday, August 28, CNN followed the program with a feature story on the disease . The rapid descent into illness that often occurs and the amazing […]