Patient Support
We are excited to have so many people signed up for the AEA Family Day already. It promises to be a great day of sharing, learning, and doing! The workshops ‘Managing Cognitive Challenges’, Art Therapy and Mindfulness have reached capacity and are no longer available. However, you can still sign up for Journaling. These workshops […]
We are excited to share with you that Kayla Storr will be joining AE Alliance as our Online Engagement Volunteer. She will support the Smart Patients AE online community members. Meet Kayla! ‘Hi my name is Kayla and I was diagnosed with AE five years ago. I was a senior in high school getting ready for […]
Please join us on Saturday, September 18th, for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. Check out the schedule! When: Saturday, September 18, 11 – 5 PM EST […]
Dr. Amaia Muñoz Lopetegi (Hospital Clinic of Barcelona – Spain) has been awarded the AEA Community Seed Grant to investigate the Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Seed Grant, can you tell us […]
AE survivors and family members had a unique opportunity to ask questions of two physicians in the field during Florence Forth weekend. Anusha Yeshokumar and Eliza Gordon-Lipkin were generous with their time and joined us by video conference. Their current interests are in many aspects of the disease, but a primary focus is long-term outcomes […]
AE Alliance receives questions on a daily basis from patients and caregivers on diagnosis, treatment, recovery, and research. Sometimes these questions are very specific, but often they will apply to a lot of patients and caregivers. Starting in October, we will have a new segment in our newsletter: Ask the Panel. Your question will be […]
Team Fledderjohn is fundraising and raising AE Awareness in honor of their son Alex, a bright young man who was diagnosed with Anti-NMDAR Autoimmune Encephalitis after being misdiagnosed for over 7 years. Please join them on August 17, 2019 in West Chester, Ohio for an AE Awareness gathering. They will have a neurologist and psychiatrist […]
Just a reminder to let you know that the AE Family weekend is coming up in about four weeks on March 2 in Durham, NC. Meet other families going through similar challenges. Share stories and learn about the latest treatments and discover strategies to make every day better. HAVE FUN AND GET ACTIVE with our annual […]
You are invited to join us on March 2, 2019 for the AE Family Weekend in Durham, NC. Meet other families going through similar challenges. Share stories and learn about the latest treatments and discover strategies to make every day better. Meet with experts in the field of Autoimmune Encephalitis. There is plenty of time […]
With Thanksgiving upon us in the US and the holiday season approaching, here at the Autoimmune Encephalitis Alliance we want to take a few minutes to express our heartfelt gratitude to the many people who make fighting this rare illness possible: Thank you to the people affected by AE and their families and friends, who […]