Patient Support

Luncheon for patients with autoimmune encephalitis and their families draws 150 people from U.S. and Canada March 24, 2016

Over 150 patients and family members affected by autoimmune encephalitis gathered in Durham, NC, for a luncheon on March 5. Known simply as the “Family Lunch” the event is a chance to meet others affected by autoimmune encephalitis, laugh, celebrate, remember those lost to the disease, and share stories both privately and publicly. Having grown in […]

AEA Family weekend March 6 – 8, 2020 December 6, 2019

You are invited to join us from March 6 – 8, 2020 for the AEA Family Weekend in Durham, NC. Meet other families going through similar challenges. Share stories and learn about the latest treatments and discover strategies to make every day better. Meet with experts in the field of Autoimmune Encephalitis. There is plenty […]

Meet Dr. Amaia Muñoz Lopetegi! May 26, 2021

Dr. Amaia Muñoz Lopetegi (Hospital Clinic of Barcelona – Spain) has been awarded the AEA Community Seed Grant to investigate the Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Seed Grant, can you tell us […]

“No miracle, just our brain” by Jules Morgan October 26, 2016

Neuroplasticity is the brain’s ability to reorganize itself by forming new neural connections, allowing neurons (nerve cells) in the brain to compensate for injury and disease and to adjust their activities in response to new situations or to changes in their environment. The following is from an article in The Lancet Neurology. Written by Jules Morgan, “No […]

OHIO – AEA Support Group Meeting December 5, 2019

We are excited to announce the first AEA Support Group Meeting in Ohio, the first of many to come! This Support Group brings together patients and caregivers that have been affected with Autoimmune Encephalitis. The support group provides an opportunity for patients and caregivers to share personal experiences and feelings, coping strategies, or firsthand information […]

Register Now for the Virtual AEA Family Day August 6, 2021

Please join us on Saturday, September 18th, for the Virtual AEA Family Day! Meet other families going through similar challenges and share stories about your AE journey. Learn about the latest research and discover strategies to manage stress and improve each day. Check out the schedule!  When: Saturday, September 18, 11 – 5 PM EST   […]

Join 1600 others for Florence Forth Race and Family Lunch on March 4, 2017 February 23, 2017

You don’t have to be a runner or walker to support those affected by autoimmune encephalitis on March 4, 2017, but if you are, come share your spirit, laughter, and competitive spirit with 1600 soon-to-be friends at Florence Forth. There is also a wonderful Family Lunch for patients and their immediate families at noon (doors […]

We are changing things up! December 13, 2019

Every week I will share some new details on the 2020 AEA Family weekend because we are revamping this wonderful event! New in 2020 will be the location; the Museum of Life and Science in Durham, NC. This is a great location for everyone and every age and has so much to offer. Their outdoor space is most impressive. You […]