Meet Kayla, our Online Engagement Volunteer!

August 10, 2021

We are excited to share with you that Kayla Storr will be joining AE Alliance as our Online Engagement Volunteer. She will support the Smart Patients AE online community members.  

Meet Kayla!

‘Hi my name is Kayla and I was diagnosed with AE five years ago. I was a senior in high school getting ready for college. It took a couple of years for me to completely heal and the journey was long and hard. Since then I’ve gone to college, gotten a full-time job in healthcare, and got married this past April. My health has been great and once in a while I get fatigued but that is a part of AE.

I want to help others who are struggling with AE and encourage them by telling them my story. I’ve talked to multiple families about my story and my experience which has encouraged them and given them hope. I’m excited to help others and hear their stories as well’.

Learn more about Kayla’s AE journey: