Patient Support

Clinical outcomes of pediatric Anti-NMDA receptor encephalitis February 27, 2021

https://pubmed.ncbi.nlm.nih.gov/33046392/

AE Alliance financially supports and facilitates research May 4, 2021

A great example of AE Alliance facilitating research is the recently published ‘Best Practice Recommendations for diagnosis, acute-, symptomatic-, and long-term management of Autoimmune Encephalitis’. The recommendations result from the hard work and collaboration between 68 AEA Clinicians Network members from 17 countries, initiated and led by Dr. Hesham Abboud (University Hospitals, OH). These recommendations […]

We Got A Match! May 7, 2021

The Research Network funds research that has a direct impact on those affected by AE. We have two generous donors that will match any donation you make to the Research Network, up to $15,000.  With your support last year, we are investing in three impactful AE studies! We will announce these grant recipients on Tuesday May […]

The 2021 AEA Community Seed Grant winners May 11, 2021

Last year we launched the Research Network at the start of the COVID-19 pandemic. A year later, we are still in the midst of the pandemic but seeing the light at the end of the tunnel. With your support in 2020, we can financially support three research studies focused on the diagnosis, management, and outcomes […]

We are sending virtual hugs! November 19, 2020

November is National Family Caregivers Month, which recognizes and supports all the work caregivers do to support their loved ones with autoimmune encephalitis. There are over 53 million Americans who are unpaid caregivers to family, friends, and neighbors. Caregiving often has a significant impact on the life of the caregiver. It can make maintaining your […]

1 in 7,000 May 18, 2021

There are 7,000 rare diseases that affect millions of people. In the USAA disease is considered rare if fewer than 200,000 people are affected by it. Because these diseases are rare, a lot is still unknown. This creates problems in the management of rare diseases, like autoimmune encephalitis, because it leads to misdiagnosis, unmet treatment, […]

Meet Dr. Juna de Vries! May 20, 2021

Dr. Juna de Vries (Erasmus University – The Netherlands) has been awarded the AEA Community Seed Grant to investigate the Patient Reported Outcomes while Manipulating the Immune System in autoimmune Encephalitis. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Community Seed Grant, can you tell […]

Meet Dr. Amaia Muñoz Lopetegi! May 26, 2021

Dr. Amaia Muñoz Lopetegi (Hospital Clinic of Barcelona – Spain) has been awarded the AEA Community Seed Grant to investigate the Subclinical activity in anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Learn more about her study and how this will affect those affected with autoimmune encephalitis. You have been awarded the AEA Seed Grant, can you tell us […]