Join us for the AE Family Weekend

December 24, 2018

You are invited to join us on March 2, 2019 for the AE Family Weekend in Durham, NC. Meet other families going through similar challenges. Share stories and learn about the latest treatments and discover strategies to make every day better. Meet with experts in the field of Autoimmune Encephalitis. There is plenty of time for fun and recreation too, all while you connect with other families and make new friends.

HAVE FUN AND GET ACTIVE with our annual Florence Forth road race. You can walk or run (or do a little of both) and if you are not a runner, come and cheer!

EAT AND SHARE at the AE Alliance Family Luncheon. Patients and families will have the chance to share experiences, while enjoying a great lunch.

GAIN INSIGHT from experts in the field of Autoimmune Encephalitis who will talk about the latest developments and answer questions.

We just confirmed that the doctors speaking after the lunch will be Dr. Heather Van Mater (Duke University – pediatric) and Dr. Anusha Yeshokumar (Icahn School of Medicine at Mount Sinai – adult/pediatric). We are excited to have them join us, seeing how they both have accomplished so much in this field!

GET CREATIVE AND BOND with peers in a specialized workshop aimed at patients age 12 -18.

Dr. Rebecca Sadun (Duke University) will lead the workshop for teens and preteens. She has a lot of experience with leading these sessions and has come up with a great program.

CONNECT with siblings while doing lots of fun activities.

In addition, we invite you to start fundraising and raise awareness for AE. Click on this link to find out how you can help!

We already have two teams registered, so that is great, but we need many more! You don’t have to run Florence Forth or attend the AE Family weekend to help us fundraise, you can create your own fundraiser.

What will we use your donations for?

  • Setting up Local Support Groups. By sharing struggles and celebrations, learning at educational opportunities, exchanging resources, patients and caregivers can experience healing and comfort knowing they are not alone.
  • Research studies. We have had multiple requests to fund research for 2019 and we would like to be supportive of all of them.
  • Creating awareness amongst doctors.

Note that sign-ups for the race and for lunch/other activities must be done separately: Race and Family Lunch.

We are finalizing the details for the weekend and will keep you updated as we go along. If you have any questions, please contact Kimberley de Haseth at