AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Dr. Arun Venkatesan discusses Acute Encephalitis: Prognostic factors and novel therapies.

Dr. Arun Venkatesan Associate Director, Neurology Residency Program; Assistant Professor of Neurology, Johns Hopkins School of Medicine   The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can …

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Dr. Jenny Frankovich discusses Pediatric Acute Onset Neuropsychiatric Syndromes (PANS)

Dr. Jenny Frankovich Clinical Assistant Professor, Pediatric Rheumatology, Stanford University The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE Alliance website.

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Dr. Eric Lancaster discusses The uses and misuses of titers in autoimmune encephalitis

Dr. Eric Lancaster Assistant Professor of Neurology, Perelman School of Medicine, University of Pennsylvania   The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on …

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Anti-NMDA Receptor Encephalitis in Psychiatry

Anti-NMDA Receptor Encephalitis in Psychiatry Kayser et al. Curr Psychiatry Rev. 2011; 7(3):189-193. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3983958/ “Anti-NMDA receptor encephalitis is an autoimmune disorder in which antibodies attack NMDA (N-methyl-D-aspartate)-type glutamate receptors at central neuronal synapses. Symptoms include a highly characteristic set of neurologic deficits, but also prominent psychiatric manifestations that often bring mental health professionals into the …

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International Experts Gathering in Durham, NC to Discuss Cure for Rare Disease

First Annual International Autoimmune Encephalitis Symposium, March 27-28, 2014 On March 27th, doctors and scientists from across the US and the world will gather for a two day AE Symposium, the goal of which is to improve the diagnosis, treatment and care for children and adults with autoimmune encephalitis (AE) and advance research towards a …

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Anti-N-methyl-D-aspartate receptor encephalitis: A targeted review of clinical presentation, diagnosis, and approaches to psychopharmacologic management

Anti-N-methyl-D-aspartate receptor encephalitis: A targeted review of clinical presentation, diagnosis, and approaches to psychopharmacologic management Kruse et al Annals of Clinical Psychiatry. 2014 Feb;26(1):e1-9 https://www.researchgate.net/profile/Michael_Davis27/publication/260118368_Anti-N-methyl-D-aspartate_receptor_encephalitis_A_targeted_review_of_clinical_presentation_diagnosis_and_approaches_to_psychopharmacologic_management/links/559b423708ae5d8f39380611/Anti-N-methyl-D-aspartate-receptor-encephalitis-A-targeted-review-of-clinical-presentation-diagnosis-and-approaches-to-psychopharmacologic-management.pdf Anti-N-methyl-d-aspartate receptor encephalitis was formally described in 2007 and includes a range of psychiatric and neurologic symptoms. Most patients with anti-NMDAR encephalitis initially present to psychiatrists for diagnosis and treatment. …

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Valentine’s Day

Most of our attention over the past 6 – 8 weeks have been directed towards the Florence Forth road race.  Today we wanted to offer a trip down memory lane from Valentines Day 2012. Happy Valentines Day Two years ago, Leslie and Florence’s Pops combined to write this blog post. This was Florence’s last big …

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It’s Our 1st Anniversary

Today, December 17th, is the one year anniversary of the Autoimmune Encephalitis Alliance becoming a non-profit organization. 2013 was a wonderful year with many great events, including Florence Forth, Across the Starting Line, educational Grand Rounds and book readings and many amazing connections with families, patients and doctors. We look forward to working with all of …

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