AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Diagnostic Criteria for AE Released

A newly released precis provides clear diagnostic criteria for autoimmune encephalitis. This effort, lead by Dr. Domingo Escudero, Dr. Francesc Graus and Dr. Josep Dalmau, summarizes the Lancet Neurology article “A clinical approach to autoimmune encephalitis“. The Lancet Neurology article  provides the first broadly accepted criteria for diagnosing autoimmune encephalitis.  A previous AE Alliance blog reviewed the article and it’s connection to the first International …

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Former Bear, Dallas Cowboy with autoimmune encephalitis attempts football comeback

Pro Football Talk’s Josh Alper writes, Former Texans first-round pick Amobi Okoye made an appearance at this year’s draft to announce a Texans pick and then made an announcement of his own about his hopes of returning to the field after recovering from autoimmune encephalitis. Okoye, who also played for the Bears, spent three months in …

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Do you have experience with Rituximab/Rituxan as treatment for autoimmune encephalitis?

One of the most frequent requests we receive from patients/caregivers seeks greater information on the use of Rituximab (trade name is Rituxan). Are you a caregiver, recovering patient, or physician that has experience with the use of Rituximab as a treatment for AE that you believe would benefit others? There are two ways you can help. 1) Share …

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Anti-N-Methyl-D-Aspartate Receptor Encephalitis: A new challenging entity for consultation-liaison psychiatrist

Anti-N-Methyl-D-Aspartate Receptor Encephalitis: A new challenging entity for consultation-liaison psychiatrist Maccaferri et al Brain Disord Ther 2016 May; 5(2):215 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4959779/ Anti-N-methyl-D-aspartate receptor encephalitis is a relatively newly identified autoimmune neuropsychiatric disorder that predominantly affects children and young adults. Although psychiatric symptoms are highly prevalent and frequently severe, it has mainly been reported in neurological, but …

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Brazilian scientists find new Zika-linked brain disorder in adults

The following article was published by Rueters on April 11, 2016. “The new discovery now shows Zika may provoke an immune attack on the central nervous system as well.” Brazilian scientists have found a that there is a link between Zika and an autoimmune syndrome called acute disseminated encephalomyelitis, that attacks the brain and spinal cord. Zika, a mosquito-borne …

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Rituximab shows second-line promise in autoimmune limbic encephalitis

“Rituximab is effective and safe as a second-line immunotherapy for autoimmune limbic encephalitis, regardless of autoantibody status. Additional monthly rituximab therapy might potentiate the efficacy of rituximab,” concludes the authors of this Rituximab study published in medical journal, Neurology.  Lucy Piper of News Medical, an online, open-access medical information provider has published the article”Rituximab shows second-line promise in …

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