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We would like to invite all AE patients and their caregivers to make a difference in research on the disease. Please click on the correct link below and join us in moving the research forward. The AE Alliance is honored to be participating in a study authored by Dr. Anusha Yekoshumar at The Icahn School […]
My name is Alex and I live in Toronto, Canada. I was diagnosed with Hashimoto’s Encephalitis in April, 2017. It’s hard to pinpoint a specific moment when my symptoms started because the onset was very gradual. In late 2012, I was working on my master’s degree. One evening in November I stayed alone at my […]
The New England Journal of Medicine published an article by Josep Dalmau and Francesc Graus last month. This comprehensive article covered many aspects of the disease, including ideas about how the antibodies might cause dysfunction in the brain. Practical points of interest to lay persons included the following: AE includes a group of diseases in […]
Prior to contracting AE, I was a 26-year old male working in the pharmaceutical industry. I had the opportunity to travel to many different places across the world and lived a busy life. I was also a family man sharing life with my 2-year old daughter and better half. Late last year I contracted AE […]
The AE Alliance hosted the annual Florence Forth Race on March 3, 2018, drawing over 1100 runners and walkers. Some were AE survivors and their families from all over the nation and Canada. Cold weather did not dampen the spirits of participants as they ran, walked and cheered each other on for this fundraiser that […]
Over the past 7 years, I’ve been battling, both Autoimmune Encephalitis and Epilepsy. I’m very grateful to have received comprehensive care, including two brain surgeries, from an amazing team of neurologists at UCSF. I’m very hopeful that what my case has enabled my doctors to discover will ultimately help others, and it’s my goal to […]
The importance of awareness of AE among child psychiatrists has been emphasized in a recent publication by Mooneyham, Gallentine and VanMater of the Duke University Children’s Hospital Autoimmune Brain Disease Program. They note that the nature of early symptoms may lead children to be evaluated first by a psychiatrist. These may include the acute or […]
Come join your AE community at the annual Florence Forth Road Race and AE Family Lunch on March 3, 2018 in Durham, NC. It’s a chance for AE survivors to join together and share stories. The center piece of the weekend is a walk/run on Saturday morning called Florence Forth. Then after the walk/run is […]
Autoimmune encephalitis experts at the Mayo Clinic published the first population-based study of AE in an effort to determine the incidence of the disease. The researchers found that in the last decade approximately 1 in every 100,000 people develop AE each year. This translates into approximately 4,000 new AE cases in the US annually and […]
Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the […]
