AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

International Symposium on Autoimmune Encephalitis

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus …

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Grand Rounds

Duke University Medical Center Grand Rounds Department of Psychiatry and Behavioral Sciences and the Department of Pediatrics, January 24, 2013   Host Dr. Helen Egger, Chief, Division of Child and Family Mental Health and Developmental Neuroscience, Department of Psychiatry and Behavioral Sciences, Duke University Medical Center Presenters Susannah Cahalan, author of Brain on Fire: My …

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Breakthrough for CF provides hope for all patients

A recent article in Scientific American about a revolutionary drug for Cystic Fibrosis (CF) patients should provide hope for everyone facing rare diseases.  The article describes in great clarity the obstacles to creating a groundbreaking new drug.  And the enormous costs – often measured in the billions of dollars.  Yes, billions with a B! “Ultimately the …

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Dr. Russell Dale discusses Autoantibodies in Childhood Encephalitis

Dr. Russell Dale Associate Professor, Discipline of Paediatrics and Child Health, Sydney Medical School; Consultant Neurologist, the Children’s Hospital at Westmead The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos …

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Dr. Sarosh Irana discusses Faciobrachial Dystonic Seizures: clinico-serological correlations

Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be …

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VIDEO: “Autoimmune Encephalopathies: The widening spectrum”

Dr. Angela Vincent Emeritus Professor of Neuroimmunology, Division of Clinical Neurology, University of Oxford The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on …

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Dr. Maarten Titulaer discusses Anti-NMDAR Encephalitis – Clinical signatures, diagnosis and treatment

Dr. Maarten Titulaer Associate Professor, Department of Neurology, Erasmus Medical Center The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE Alliance website.

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