The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.
After my daughter became sick at the age of two-and-a-half, my husband and I began a quest to find a doctor who could identify what was ailing her and treat her. Six years and 20 doctors in four states later, we were told she had autoimmune encephalitis (AE). The AE Alliance wants to make stories …
Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus …
Dallas Cowboy defensive tackle Amobi Okoye has recovered from NMDA receptor encephalitis and is preparing for a return to the NFL this fall. I had to read the story by The Dallas Morning News’ Rainer Sabin twice. Okoye is the first professional athlete to have autoimmune encephalitis and the first to attempt to return to professional sports. …
Susannah Cahalan and Dr. Souhel Najjar NY Times best selling author and AE survivor Susannah Cahalan reads from Brain on Fire and has a conversation with the doctor who saved her life, Dr. Souhel Najjar. The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts …
Duke University Medical Center Grand Rounds Department of Psychiatry and Behavioral Sciences and the Department of Pediatrics, January 24, 2013 Host Dr. Helen Egger, Chief, Division of Child and Family Mental Health and Developmental Neuroscience, Department of Psychiatry and Behavioral Sciences, Duke University Medical Center Presenters Susannah Cahalan, author of Brain on Fire: My …
A recent article in Scientific American about a revolutionary drug for Cystic Fibrosis (CF) patients should provide hope for everyone facing rare diseases. The article describes in great clarity the obstacles to creating a groundbreaking new drug. And the enormous costs – often measured in the billions of dollars. Yes, billions with a B! “Ultimately the …
Dr. Russell Dale Associate Professor, Discipline of Paediatrics and Child Health, Sydney Medical School; Consultant Neurologist, the Children’s Hospital at Westmead The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos …
Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be …
Dr. Angela Vincent Emeritus Professor of Neuroimmunology, Division of Clinical Neurology, University of Oxford The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be viewed on …
Dr. Maarten Titulaer Associate Professor, Department of Neurology, Erasmus Medical Center The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be viewed on the AE Alliance website.
