AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Podcast by Elizabeth Nakano tells the story of surviving autoimmune encephalitis

In 2014, Jake Pickard watched doctors try to save his girlfriend’s brain. What happened would dramatically change their relationship and their lives. Reporter Elizabeth Nakano headed to Eastham, MA, to interview them about the aftermath. Elizabeth’s story titled, Reset, can be heard through the Public Radio Exchange website. We are grateful to Elizabeth, Marirose, Jake, and PRX for …

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Your experience helps others find doctors that treat autoimmune encephalitis

  Did you know that the Autoimmune Encephalitis Alliance has a “Clinicians Network” which helps patients find doctors around the globe? We need your help expanding this network. If you are a patient, caregiver, family member, or physician and had a positive experience with a medical professional that treats AE, please write to him/her and ask that he/she …

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Diagnostic Criteria for AE Released

A newly released precis provides clear diagnostic criteria for autoimmune encephalitis. This effort, lead by Dr. Domingo Escudero, Dr. Francesc Graus and Dr. Josep Dalmau, summarizes the Lancet Neurology article “A clinical approach to autoimmune encephalitis“. The Lancet Neurology article  provides the first broadly accepted criteria for diagnosing autoimmune encephalitis.  A previous AE Alliance blog reviewed the article and it’s connection to the first International …

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Former Bear, Dallas Cowboy with autoimmune encephalitis attempts football comeback

Pro Football Talk’s Josh Alper writes, Former Texans first-round pick Amobi Okoye made an appearance at this year’s draft to announce a Texans pick and then made an announcement of his own about his hopes of returning to the field after recovering from autoimmune encephalitis. Okoye, who also played for the Bears, spent three months in …

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Do you have experience with Rituximab/Rituxan as treatment for autoimmune encephalitis?

One of the most frequent requests we receive from patients/caregivers seeks greater information on the use of Rituximab (trade name is Rituxan). Are you a caregiver, recovering patient, or physician that has experience with the use of Rituximab as a treatment for AE that you believe would benefit others? There are two ways you can help. 1) Share …

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Anti-N-Methyl-D-Aspartate Receptor Encephalitis: A new challenging entity for consultation-liaison psychiatrist

Anti-N-Methyl-D-Aspartate Receptor Encephalitis: A new challenging entity for consultation-liaison psychiatrist Maccaferri et al Brain Disord Ther 2016 May; 5(2):215 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4959779/ Anti-N-methyl-D-aspartate receptor encephalitis is a relatively newly identified autoimmune neuropsychiatric disorder that predominantly affects children and young adults. Although psychiatric symptoms are highly prevalent and frequently severe, it has mainly been reported in neurological, but …

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