Blog

A recent article in Neurology Now, a publication of the American Association of Neurology for laypeople, notes many children and adolescents are continuing to experience cognitive problems, fatigue and behavioral problems even after recovery from anti-NMDA receptor AE. They observed these issues are affecting academic performance and quality of life in a Dutch study of […]

AE survivors and family members had a unique opportunity to ask questions of two physicians in the field during Florence Forth weekend.  Anusha Yeshokumar and Eliza Gordon-Lipkin were generous with their time and joined us by video conference. Their current interests are in many aspects of the disease, but a primary focus is long-term outcomes […]

One of our goals at the AE Alliance is to distribute high-quality educational information for all who are touched by the illness. We have compiled a list of about a dozen articles that may be of interest. This is not an exhaustive list; it is merely a sampling of the main articles published on AE. […]

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, “it’s time to get on with life.” That sounds good to me and probably even better to you.  But before you go rushing back out into that big wide world, I need you to […]

We would like to invite all AE patients and their caregivers to make a difference in research on the disease. Please click on the correct link below and join us in moving the research forward. The AE Alliance is honored to be participating in a study authored by Dr. Anusha Yekoshumar at The Icahn School […]

My name is Alex and I live in Toronto, Canada. I was diagnosed with Hashimoto’s Encephalitis in April, 2017. It’s hard to pinpoint a specific moment when my symptoms started because the onset was very gradual. In late 2012, I was working on my master’s degree. One evening in November I stayed alone at my […]

The New England Journal of Medicine published an article by Josep Dalmau and Francesc Graus last month. This comprehensive article covered many aspects of the disease, including ideas about how the antibodies might cause dysfunction in the brain. Practical points of interest to lay persons included the following: AE includes a group of diseases in […]

Prior to contracting AE, I was a 26-year old male working in the pharmaceutical industry. I had the opportunity to travel to many different places across the world and lived a busy life. I was also a family man sharing life with my 2-year old daughter and better half. Late last year I contracted AE […]

The AE Alliance hosted the annual Florence Forth Race on March 3, 2018, drawing over 1100 runners and walkers. Some were AE survivors and their families from all over the nation and Canada. Cold weather did not dampen the spirits of participants as they ran, walked and cheered each other on for this fundraiser that […]

Over the past 7 years, I’ve been battling, both Autoimmune Encephalitis and Epilepsy.  I’m very grateful to have received comprehensive care, including two brain surgeries, from an amazing team of neurologists at UCSF.  I’m very hopeful that what my case has enabled my doctors to discover will ultimately help others, and it’s my goal to […]