Autoimmune Encephalitis
You don’t have to be a runner or walker to support those affected by autoimmune encephalitis on March 4, 2017, but if you are, come share your spirit, laughter, and competitive spirit with 1600 soon-to-be friends at Florence Forth. There is also a wonderful Family Lunch for patients and their immediate families at noon (doors […]
Hanging out with friends and being a normal 19-year old seemed to be the right thing to do during the summer of 2010. Having a great time and then it all went black . . . I woke up in the hospital in Delta, Colorado. It was very faint. I remember my grandparents were there […]
Giving Tuesday, celebrated on the Tuesday following Thanksgiving (in the US), is a global giving movement in it’s sixth year. In response to shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving. We are always so touched at AEA by the generous spirit […]
It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]
It was October 11, 2022 when we introduced Dr. Leigh Sepeta & Dr. Elizabeth Wells. Click here for their introductory post where we learned about them, their study plans and how their project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Leigh Sepeta explains the outcomes of […]
Shawn Kregan contacted the Autoimmune Encephalitis Alliance in August of 2016, and we have been connecting regularly ever since. He has put together a voice memo to aid and inspire those who struggle with AE. Shawn wants everyone to know that sharing experiences gives others confidence and strength, so don’t be afraid to tell people […]
As difficult as diagnosis and treatment are for autoimmune encephalitis, fortunately for the community of patients, families, and caregivers, rapid progress has been made within only a decade. A group of physicians in Oxford, England has published a review for the journal Neuropharmacology that summarizes the various types of AE, including a classification of syndromes, […]
“I am a walking miracle.” These are the words of Amobi Okoye, who shared intimate details of his battle with anti-NMDA receptor encephalitis on ESPN’s Monday Night Countdown this week. Drafted by the Texans at only 19 years old, he played 6 seasons for Houston, then 2 for Chicago. He was the picture of health, […]
It was May 20, 2021 when we introduced Dr. Juna de Vries . Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. de Vries explains the outcomes of […]
The AE Alliance and Medical Advisory Board (MAB) are excited to announce our new AEA Monthly Didactic + Case Discussion series. The AE Alliance hosted its inaugural Challenging Case Conference in February 2023. Every alternating month, the MAB and Clinicians Network members were invited to deliberate on challenging cases and explore innovative diagnostic and treatment […]