Autoimmune Encephalitis
The Journal of the American Medical Association Nuerology reports the following by authors Volker Behrendt, MD1; Christos Krogias, MD1; Anke Reinacher-Schick, MD2; Ralf Gold, MD1; and Ingo Kleiter, MD1: Anti-NMDAR autoimmune encephalitis, associated with ovarian teratoma, predominantly affects young females.1 Because antibodies against subunits of the NMDAR contribute to the pathogenesis, methods targeting humoral immunity are therapeutically efficacious.2 However, some patients have an unsatisfactory outcome after high-dose corticosteroids, apheresis […]
“Mommy, the baby isn’t moving.” Words no parenting class can prepare you for. As I rushed to my son’s aid, I would find him face down, unresponsive behind the couch. His skin cold to the touch, his eyes glazed over, drool dripping from his mouth. Alive, but my little boy was not there, he was […]
My name is Leah Ehle. I am married and have two Pugs. I live in Connecticut and work as a Nurse Practitioner in the field of gastroenterology. I have worked in the medical field for over 10 years, first in oncology and then after my masters I went into gastroenterology. I have always prided myself […]
Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]
Many thanks to Stanley J. Naides, MD, FACP, FACR, Chair, Board of Directors, Autoimmune Encephalitis Alliance as our speaker for the September 2024 AEA Provider Monthly Didactic + Case Discussion series, The Role of the Laboratory in Autoimmune Neurology. The identification of pathological autoantibodies to neural targets has aided diagnosis and prognosis in patients with autoimmune […]
Science Direct has published an article by authors van Sonderen, M.W.J. Schreurs , P.W. Wirtz , P.A.E. Sillevis Smitt, and M.J. Titulaer that a wide variety of clinical syndromes has been associated with antibodies to voltage-gated potassium channels (VGKCs). Six years ago, it was discovered that patients do not truly have antibodies to potassium channels, but […]
HLN will air an episode on autoimmune encephalitis as part of their series “Something’s Killing Me,” on August 27, 9 p.m. EST. The show will feature the experiences of Susannah Cahalan, Emily Gavigan, and Madison Jensen. We are pleased that AEA had the privilege of helping CNN answer questions about the disease and make introductions […]
For many AE patients and family members, time seems to stand still during the long hours spent in the hospital, infusion centers, traveling, or even at home while recovering. This might be eased by the simple pleasure of listening to music. While classical or jazz may be pleasant to one patient, it might not be for […]
Dr. Leigh Sepeta & Dr. Elizabeth Wells (Children’s National Hospital, Washington DC, USA) were awarded a 2022 AEA Community Seed Grant to investigate the Predictors of Cognitive Outcomes in Children with Anti-NMDA Receptor Encephalitis. Learn more about their research and how it will impact those affected with autoimmune encephalitis. The start date for the award […]
Dr. J. Nicholas Brenton (The Rector and Visitors of the University of Virginia, Charlottesville, VA, USA) was awarded a 2024 AEA Community Seed Grant for the investigation of Capacity, Endurance, and Physical Activity in Children with MOG+ Encephalitis. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the […]