Patient Support
It was September 1, 2022 when we introduced Dr. Matteo Gastaldi. Click here for his introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Gastaldi explains the outcomes of his project, the Cognitive teleRehabilitation in […]
We are excited to announce the Fall AEA Family Day (mini). Instead of a single, full-day, AEA Family Day, the AE Alliance and our program sponsor, EUROIMMUN offer several mini-days throughout the year. This gives us the opportunity to respond to topics that are important to you throughout the year. The Fall AEA Family Day […]
Thank you Dr. Mitchell for a clear and engaging explanation of the what happens in the body with AE. Thank you to the AEA Northeast Support Group for recommending Dr. Mitchell as a presenter. Thank you to everyone for your attendance, great questions and feedback. This post includes an overview of the presentation, participant feedback […]
It was May 14, 2021 when we introduced Dr. Soon-Tae Lee. Click here for last year’s post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Lee explains the outcomes of his project, Development of optimal […]
It was May 20, 2021 when we introduced Dr. Juna de Vries . Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. de Vries explains the outcomes of […]
It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]
Our online AE Smart Patients Community has undergone a make-over, making it even easier to search by topic and connect. You can join the community for free to share, interact, and learn from others affected by autoimmune encephalitis in a safe, supportive environment. We started working with Smart Patients in September 2018 to provide our […]
AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? Raise funds for the 2023 Seed Grant Program. Provide you, the AEA Community a strong understanding of the huge importance of research and AE. What can you expect during May 2022? A better understanding […]
AE Alliance is proud to partner with EUROIMMUN again on the AEA Family Day. Just like last year, EUROIMMUN will be handing out Service Awards for a patient/caregiver and doctor/researcher that had a significant impact on the lives of those affected with AE. EUROIMMUN, whose autoantibody testing panels help patients get an accurate diagnosis, is […]
There are over 100 known autoimmune diseases. Depending on the autoimmune condition, medications may be prescribed to manage symptoms and/or prevent disease progression by suppressing the immune system. The same is true for Autoimmune Encephalitis (AE), starting with first-line immunotherapy (IVIG/PE/steroids) and escalating to second-and third-line therapies, like Rituximab, Cyclophosphamide, and Tocilizumab if first-line therapies […]