My AE Journey

“We are Survivors” November 17, 2014

We are all survivors of autoimmune encephalitis.   Patients, families, friends, caretakers, doctors, nurses, rehabilitation specialists, we have all endured the worst this disease can throw at us.  And we are surviving. This weekend I had the chance to meet four amazing survivors.  Each has their own story to tell.  They shared the same stage: a six-year-old […]

Incredible 1st person account of surviving AE November 22, 2016

At this time of Thanksgiving, we are grateful to Kimberly and all of you who write to us. Whether you are looking for information, support, a doctor, or writing with appreciation we at AEA are thankful for you. Your generous donations allow us to aid people like Kimberly. Please consider showing your support for all […]

Unexpected Career Interruption – You Can Come Back Stronger from Autoimmune Encephalitis October 17, 2017

Many thanks to Will Earnhart for sharing his inspiring story reprinted below, which first appeared in the September 2017 Alaska Bar Association quarterly newspaper. As attorneys, many of us have type “A” personalities; always striving to be successful in our careers.  We never take a step back for fear of stopping the momentum.  Almost all […]

Jim’s AE Journey January 7, 2020

While living in Idaho Falls Idaho in October 2011 my husband, 44-year-old Navy Gulf War Veteran (1987-1992), started having occasional dizziness. January 2012 he started having multiple daily “episodes” lasting a couple of minutes… distorted vision, traveling goosebumps from right temple down right side of body jumping to left leg and traveling up left side […]

Celebrate the holidays with the story of a flourishing AE survivor December 22, 2015

As we are in the midst of the holiday season, what better way to celebrate than with a survivor’s story. We are grateful for Brittany’s willingness to write about her illness trusting that it might give some peace (especially this time of year) to the AEA community. MY DARK WINTER By: Brittany DiCapua They say that […]

A dramatic recovery from autoimmune encephalitis and a birthday wish for her dad December 20, 2016

A special thanks to Emily for guest blogging for AEA. Here is her story. 2015 was shaping up to be a great year.  I had moved to Charlotte, NC just over 2 years ago and bought my dream town-home in one of the most sought after neighborhoods.  I found my groove here, and had a […]

Amobi Okoye, NFL Defensive Tackle, shares a remarkable story of surviving AE December 8, 2017

“I am a walking miracle.” These are the words of Amobi Okoye, who shared intimate details of his battle with anti-NMDA receptor encephalitis on ESPN’s Monday Night Countdown this week. Drafted by the Texans at only 19 years old, he played 6 seasons for Houston, then 2 for Chicago. He was the picture of health, […]

Andrew’s Race February 22, 2020

We are excited to announce that starting today, on World Encephalitis Day, we will be following Andrew as he prepares for the Ironman 70.3 race in Victoria, B.C. on May 31. Andrew is an AE survivor and wants to raise awareness. He already writes about his life with AE on his own blog and he […]

Meet a cute Colorado kid with AE and read his family’s story January 5, 2016

As we begin a new year we want to share a story with you. It is the story of a cute Colorado kid named Rama. We hope the detailed experiences of Rama and his family will offer personal insights that each of us can understand.  The family moves from confusion to diagnosis to care to healing […]

Things siblings of children with special needs struggle with – from The Washington Post January 4, 2017

Jamie David Smith has written a terrific article on the struggles of siblings of special needs children. Smith speaks to Rachel Feichter whose daughter, Talia, has autoimmune encephalitis. “Documentary filmmaker Rachel Feichter has a typically developing 11-year-old and a 7-year-old, Talia, who has special needs as a result of a neurological autoimmune disease, Hashimoto’s encephalitis. […]