Photographby Julie Monacella
Rory with her parents Jeff and Alicia.

“The Wonder Years” – A family’s journey getting to the diagnosis of autoimmune encephalitis

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Photograph Julie Monacella

“Doctors couldn’t explain what was happening to Rory, and more important, they didn’t know how to stop its progression. Wracked with worry, I pored through medical journals late into the night. I connected online with other parents whose children suffered similar symptoms. I scheduled appointments with doctors in different states. I was determined that if the answer to what ailed Rory was out there, I would find it. And I did, but it took me nearly two years—a process that gave us a firsthand look at the toll a medical mystery can take on a family.”

Excerpted from The Wonder Years by Alicia Garceau. It originally appeared in the April 2016 issue of Indianapolis Monthly.  The full story can be found at The Wonder Years: inside a medical mystery. Ms. Garceau is on the board of directors for the Autoimmune Encephalitis Alliance. We are grateful for her family and for sharing their story.