“Doctors couldn’t explain what was happening to Rory, and more important, they didn’t know how to stop its progression. Wracked with worry, I pored through medical journals late into the night. I connected online with other parents whose children suffered similar symptoms. I scheduled appointments with doctors in different states. I was determined that if the answer to what ailed Rory was out there, I would find it. And I did, but it took me nearly two years—a process that gave us a firsthand look at the toll a medical mystery can take on a family.”
Excerpted from The Wonder Years by Alicia Garceau. It originally appeared in the April 2016 issue of Indianapolis Monthly. The full story can be found at The Wonder Years: inside a medical mystery. Ms. Garceau is on the board of directors for the Autoimmune Encephalitis Alliance. We are grateful for her family and for sharing their story.