“The Wonder Years” – A family’s journey getting to the diagnosis of autoimmune encephalitis

May 4, 2016

Photograph Julie Monacella

“Doctors couldn’t explain what was happening to Rory, and more important, they didn’t know how to stop its progression. Wracked with worry, I pored through medical journals late into the night. I connected online with other parents whose children suffered similar symptoms. I scheduled appointments with doctors in different states. I was determined that if the answer to what ailed Rory was out there, I would find it. And I did, but it took me nearly two years—a process that gave us a firsthand look at the toll a medical mystery can take on a family.”

Excerpted from The Wonder Years by Alicia Garceau. It originally appeared in the April 2016 issue of Indianapolis Monthly.  The full story can be found at The Wonder Years: inside a medical mystery. Ms. Garceau is on the board of directors for the Autoimmune Encephalitis Alliance. We are grateful for her family and for sharing their story.