My AE Journey

Ryan’s firsthand account from the UK of having autoimmune encephalitis March 23, 2018

Prior to contracting AE, I was a 26-year old male working in the pharmaceutical industry. I had the opportunity to travel to many different places across the world and lived a busy life. I was also a family man sharing life with my 2-year old daughter and better half. Late last year I contracted AE […]

Former Bear, Dallas Cowboy with autoimmune encephalitis attempts football comeback June 16, 2016

Pro Football Talk’s Josh Alper writes, Former Texans first-round pick Amobi Okoye made an appearance at this year’s draft to announce a Texans pick and then made an announcement of his own about his hopes of returning to the field after recovering from autoimmune encephalitis. Okoye, who also played for the Bears, spent three months in […]

“You can’t diagnose something you have never heard of before” – a UK woman’s story of autoimmune encephalitis April 22, 2017

Smashing windows, self-harming, and shaving her own hair, Sarah Galloway had to be placed in mental hospital before doctors could determine her illness.  ChronicleLive reports on a 22 year-old woman who fell ill with autoimmune encephalitis as she was about to enter her final year of university. Click here to read the full story. We wish Sarah […]

Alex shares her experience with Hashimoto’s Encephalitis May 4, 2018

My name is Alex and I live in Toronto, Canada. I was diagnosed with Hashimoto’s Encephalitis in April, 2017. It’s hard to pinpoint a specific moment when my symptoms started because the onset was very gradual. In late 2012, I was working on my master’s degree. One evening in November I stayed alone at my […]

Imagine waking up with no memory of the past 3 months June 21, 2016

Imagine waking up in the hospital with no memory of the past three months. Amanda and her mother talk about her treatment and recovery from AE; including the care she received at UPenn Medical Center in this four-and-a-half minute video. Amanda’s mother, Kerri, told AEA, “We wanted to share our experience to help others. Upon learning […]

“Brain under attack” by Carol Harbers May 5, 2017

Duke Health recently posted an article by Carol Habers that follows the four-year journey to an autoimmmune encephalitis diagnosis of Lucas Quinones-Reed.  “Reed, Quinones, and Lucas met with Dr. Heather Van Mater, MD, a pediatric rheumatologist and Dr. William Gallentine, DO, a pediatric neurologist. ‘They came in with a box full of medical records,’ said Van Mater. Immediately, she saw […]

A Letter from your Brain June 11, 2018

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, “it’s time to get on with life.” That sounds good to me and probably even better to you.  But before you go rushing back out into that big wide world, I need you to […]