My AE Journey

Unexpected Career Interruption – You Can Come Back Stronger from Autoimmune Encephalitis October 17, 2017

Many thanks to Will Earnhart for sharing his inspiring story reprinted below, which first appeared in the September 2017 Alaska Bar Association quarterly newspaper. As attorneys, many of us have type “A” personalities; always striving to be successful in our careers.  We never take a step back for fear of stopping the momentum.  Almost all […]

Amobi Okoye, NFL Defensive Tackle, shares a remarkable story of surviving AE December 8, 2017

“I am a walking miracle.” These are the words of Amobi Okoye, who shared intimate details of his battle with anti-NMDA receptor encephalitis on ESPN’s Monday Night Countdown this week. Drafted by the Texans at only 19 years old, he played 6 seasons for Houston, then 2 for Chicago. He was the picture of health, […]

Leah Ehle’s autoimmune encephalitis survival story December 19, 2017

My name is Leah Ehle. I am married and have two Pugs.  I live in Connecticut and work as a Nurse Practitioner in the field of gastroenterology.  I have worked in the medical field for over 10 years, first in oncology and then after my masters I went into gastroenterology. I have always prided myself […]

My New Normal: Reflections & Advice on Life After Autoimmune Encephalitis 20+yrs later January 1, 2018

“She probably has a month left before she is in a persistent vegetative state or dies.” These are not words that you or your loved ones want to hear any time, but especially when you are only 25. Friends came to say goodbyes and the outlook was bleak. Just six months prior (during the Summer […]

Amazing story of rebooting Kimberly’s brain featured on TV show March 9, 2018

Over the past 7 years, I’ve been battling, both Autoimmune Encephalitis and Epilepsy.  I’m very grateful to have received comprehensive care, including two brain surgeries, from an amazing team of neurologists at UCSF.  I’m very hopeful that what my case has enabled my doctors to discover will ultimately help others, and it’s my goal to […]

“You can’t diagnose something you have never heard of before” – a UK woman’s story of autoimmune encephalitis April 22, 2017

Smashing windows, self-harming, and shaving her own hair, Sarah Galloway had to be placed in mental hospital before doctors could determine her illness.  ChronicleLive reports on a 22 year-old woman who fell ill with autoimmune encephalitis as she was about to enter her final year of university. Click here to read the full story. We wish Sarah […]

Alex shares her experience with Hashimoto’s Encephalitis May 4, 2018

My name is Alex and I live in Toronto, Canada. I was diagnosed with Hashimoto’s Encephalitis in April, 2017. It’s hard to pinpoint a specific moment when my symptoms started because the onset was very gradual. In late 2012, I was working on my master’s degree. One evening in November I stayed alone at my […]

A Letter from your Brain June 11, 2018

As time passes and you and I feel better and better, people, even doctors, will tell you that we are fine, “it’s time to get on with life.” That sounds good to me and probably even better to you.  But before you go rushing back out into that big wide world, I need you to […]

Fighter July 20, 2018

I am a survivor, sometimes I feel weak but after all I have been through, I know I am stronger than I think I am. When I feel pity for myself I remember that there are people who have gone through worse situations than me. When you cannot change or control the situation, you must […]

Vanessa’s amazing story from Seattle September 15, 2018

I remember so well the day I came back into consciousness in July 2017 in Washington. I was lying in a hospital bed, President Trump making a speech on TV, and ‘Get Well’ balloons on my left. First thought was, why am I here? And second was, isn’t Obama the U.S President? Shortly after, my […]