Clinical Approach To The Diagnosis Of Autoimmune Encephalitis In The Pediatric Patient June 20, 2023

We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]

2023 Research Network Month: Dr. Amaia Muñoz-Lopetegi ~ 2021 AEA Community Seed Grant Recipient ~ Research Update May 15, 2023

Dr. Amaia Muñoz-Lopetegi received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, she provides an update on her research with anti-LGI1 encephalitis: diagnostic tests and prognostic implications. The AEA Community Seed Grant program is funded by donations from the AEA Support Network community & friends. Awarded applications must meet […]

2023 Research Network Month: Dr. Soon-Tae Lee ~ 2021 AEA Community Seed Grant ~ Research Update May 9, 2023

Dr. Soon-Tae Lee received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, he provides an update on his research with seronegative autoimmune encephalitis: clinical characteristics and courses, the effect of immunotherapy and its duration, and prognostic factors. The AEA Community Seed Grant program is funded by donations from the […]

Research Network Month 2023 May 3, 2023

AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? What can you expect during May 2023? How can you ensure you don’t miss out? If you are on Facebook or Instagram, follow us! Not a social media person? Check our blog daily. We may not post everyday but […]

Autoimmune Encephalitis Often Is Misdiagnosed, Even at Specialty Centers – What to Do to Get It Right February 27, 2023

Dr. Eoin Flanagan from the Mayo Clinic in Rochester, Minnesota and colleagues from multiple institutions have published this article demonstrating that more than one in five patients diagnosed with autoimmune encephalitis (AE) were misdiagnosed and that about half of these patients actually had a primary behavioral or psychiatric disorder. Red flags associated with receiving the […]

Develop an Attitude of Gratitude this December with the AE Alliance November 9, 2022

Whether you are living with AE, are a caregiver, family member, friend, physician, researcher, Board Member, MAB Member, program partner or sponsor or this is your first time ever to the Autoimmune Encephalitis website, we are excited you are here and ready to develop an attitude of gratitude! This program is inspired by a year […]

Autoimmune Encephalitis Day of Strength May 26, 2019

Texas Children’s Hospital will hold their AE Day of Strength on July 27 in Houston TX and you are invited to join! The AE Day of Strength will allow patients and their families to hear disease updates, discuss coping strategies and connect with other AE families. There will be special activities to honor all siblings. […]

AEA Family Day 2022 October 14, 2022

We are excited to announce the Fall AEA Family Day (mini). Instead of a single, full-day, AEA Family Day, the AE Alliance and our program sponsor, EUROIMMUN offer several mini-days throughout the year. This gives us the opportunity to respond to topics that are important to you throughout the year. The Fall AEA Family Day […]

AE 101 with Dr. Dana Mitchell June 3, 2022

Thank you Dr. Mitchell for a clear and engaging explanation of the what happens in the body with AE. Thank you to the AEA Northeast Support Group for recommending Dr. Mitchell as a presenter. Thank you to everyone for your attendance, great questions and feedback. This post includes an overview of the presentation, participant feedback […]

Outcomes after AE – #AskMeAboutAE March 10, 2021

At the WED Conference we heard Dr. Tom Pollak talk about how after encephalitis you need to establish a new relationship with your body and brain. He cited research that after encephalitis, people are twice as likely to develop an anxiety disorder, nearly three times as likely to become depressed, and 114 times as likely […]