Education

Dr. Maarten Titulaer discusses Anti-NMDAR Encephalitis – Clinical signatures, diagnosis and treatment June 24, 2014

AEDr. Maarten Titulaer Associate Professor, Department of Neurology, Erasmus Medical Center The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE Alliance website.

Families attend informational session at 2018 Florence Forth Weekend June 26, 2018

AE survivors and family members had a unique opportunity to ask questions of two physicians in the field during Florence Forth weekend.  Anusha Yeshokumar and Eliza Gordon-Lipkin were generous with their time and joined us by video conference. Their current interests are in many aspects of the disease, but a primary focus is long-term outcomes […]

What is a registry? April 30, 2020

This morning we posted a video of Dr. Heather Van Mater on our social media, where she talks about a registry as an area of opportunity to advance AE Research. But what is a registry? Rare diseases present unique challenges for researchers and companies working towards treatments and cures; small and scattered patient populations, difficulty […]

Dr. Sarosh Irana discusses Faciobrachial Dystonic Seizures: clinico-serological correlations June 24, 2014

Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be […]

Texas Children’s Hospital sponsors AE Family Day of Hope July 11, 2018

We are excited to announce Texas Children’s Hospital’s upcoming “AE Family Day of Hope” on July 28, 2018 in Houston, Texas. Children are welcome and activities will be provided! This day will be filled with educational information from physicians, nurses and neuropsychologists, therapists and child life staff. This day has been organized to bring together […]

Caregiver burden in anti-NMDA receptor encephalitis June 2, 2020

A group of doctors led by Dr. Anusha Yeshokumar have assessed care transitions and caregiver burden among caregivers of individuals with anti-NMDA receptor encephalitis (anti-NMDARE). Surveying caregivers about their experience caring for those with anti-NMDARE and their perceptions of disease progression and recovery provides a unique opportunity to assess aspects of care for patients who […]

Susannah Cahalan and Dr. Najjar discuss AE August 14, 2014

Susannah Cahalan and Dr. Souhel Najjar NY Times best selling author and AE survivor Susannah Cahalan reads from Brain on Fire and has a conversation with the doctor who saved her life, Dr. Souhel Najjar. The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts […]

Texas Children’s Hospital sponsors “AE Family Day of Hope: Navigating Autoimmune Encephalitis” August 4, 2018

Texas Children’s Hospital’s “Annual Day of Hope” was well attended and a great success! Around 100 patients, family members, faculty and staff attended this event, lead by Eyal Muscal, MD, pediatric rheumatologist at TCH. Families mingled over lunch, children enjoyed creative activities and a talk was given by Dr. Muscal on the current status of […]