Working together to ensure best outcomes for AE patients. October 8, 2020

Dr. Pojen Deng and Dr. Anusha Yeshokumar (Mount Sinai Health System) discuss autoimmune encephalitis and a multidisciplinary approach to AE Care for the Psychiatric Times Health Minute. They also discuss long term management strategies, including recognition of broad psychosocial ramifications as well as individual cognitive and psychiatric sequelae.

Outcomes after AE – #AskMeAboutAE March 10, 2021

At the WED Conference we heard Dr. Tom Pollak talk about how after encephalitis you need to establish a new relationship with your body and brain. He cited research that after encephalitis, people are twice as likely to develop an anxiety disorder, nearly three times as likely to become depressed, and 114 times as likely […]

International Symposium on Autoimmune Encephalitis October 14, 2014

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus […]

Autoimmune Encephalitis: The bridge between Neurology and Psychiatry September 21, 2018

The AE Alliance is excited to announce a groundbreaking symposium titled: “Autoimmune Encephalitis: A Bridge Between Neurology and Psychiatry.” HESA (Hashimoto’s Encephalopathy SREAT Alliance) is the initiator and lead organizer of this symposium to be held on April 6, 2019 at Weill Cornell Medical School, Cornell University in New York, NY. The April 2019 symposium for doctors […]

Vitamin D October 15, 2020

Vitamin D (cholecalciferol) is a nutrient found in some foods like fatty fish that can be added to your diet as a supplement. Our body makes vitamin D when our skin is directly exposed to the sun, and most people meet at least some of their vitamin D needs this way. Vitamin D is required […]

AE 101 with Dr. Dana Mitchell June 3, 2022

Thank you Dr. Mitchell for a clear and engaging explanation of the what happens in the body with AE. Thank you to the AEA Northeast Support Group for recommending Dr. Mitchell as a presenter. Thank you to everyone for your attendance, great questions and feedback. This post includes an overview of the presentation, participant feedback […]

AE Clinicians Network: a new resource November 7, 2014

After my daughter became sick at the age of two-and-a-half, my husband and I began a quest to find a doctor who could identify what was ailing her and treat her. Six years and 20 doctors in four states later, we were told she had autoimmune encephalitis (AE). The AE Alliance wants to make stories […]

‘Ask the Expert podcast series’ on Autoimmune Encephalitis January 11, 2019

Every month the Transverse Myelitis Association holds a podcast on a topic that affects those with rare neuro-immune disorders. Experts in the field share the latest knowledge and answer questions from their community. On Thursday January 17th the podcast will cover Autoimmune Encephalitis and other rare autoimmune disorders. The Experts for this session are Dr. Michael Bradshaw […]

World Encephalitis Day Conference 2021 October 22, 2020

Mark your calendar! The World Encephalitis Day Alliance will be hosting the World Encephalitis Day Conference on Saturday February 20th, 2021. This will be a virtual conference, so anyone, anywhere can participate. We are literally taking you across the globe, with speakers from Australia, Europe, and the United States. Our Keynote Speakers are Prof. Tom […]

AE Families Come Together January 27, 2016

If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families […]