Education

AE Families Come Together January 27, 2016

If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families […]

AE Clinicians Network: a new resource November 7, 2014

After my daughter became sick at the age of two-and-a-half, my husband and I began a quest to find a doctor who could identify what was ailing her and treat her. Six years and 20 doctors in four states later, we were told she had autoimmune encephalitis (AE). The AE Alliance wants to make stories […]

International Symposium on Autoimmune Encephalitis October 14, 2014

Today, we’re thrilled to release the official report from the First Annual International Symposium on Autoimmune Encephalitis held March 27-28, 2014 in Durham, N.C. The symposium was funded with the proceeds from the 2014 Florence Forth Road Race! The primary goal of the symposium was to establish a collaborative medical community to develop a consensus […]

AEA sponsors Boston meeting on future of autoimmune neurology with ~70 medical professionals May 9, 2017

Roughly 70 researchers, nurses, neuropsychologists, neurologists, residents, fellows, patient advocates, patients, and families attended a “Dinner and Discussion on the Future of Autoimmune Neurology” on the evening of 4/27/17, held at the Richard Simches Research Center at Massachusetts General Hospital (MGH).  Organized by Dr. Jenny Linnoila, a neurologist at Massachusetts General Hospital, the overall theme […]

Dr. Sarosh Irana discusses Faciobrachial Dystonic Seizures: clinico-serological correlations June 24, 2014

Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be […]

Dr. Maarten Titulaer discusses Anti-NMDAR Encephalitis – Clinical signatures, diagnosis and treatment June 24, 2014

AEDr. Maarten Titulaer Associate Professor, Department of Neurology, Erasmus Medical Center The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE Alliance website.

Dr. Arun Venkatesan discusses Acute Encephalitis: Prognostic factors and novel therapies. June 24, 2014

Dr. Arun Venkatesan Associate Director, Neurology Residency Program; Assistant Professor of Neurology, Johns Hopkins School of Medicine The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be […]

Dr. Jenny Frankovich discusses Pediatric Acute Onset Neuropsychiatric Syndromes (PANS) June 24, 2014

Dr. Jenny Frankovich Clinical Assistant Professor, Pediatric Rheumatology, Stanford University The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE Alliance website.

AE Grand Rounds, Duke Medical Center, January 24, 2013 March 24, 2013

Department of Psychiatry and Behavioral Sciences and the Department of Pediatrics, January 24, 2013

Dr. Eric Lancaster discusses The uses and misuses of titers in autoimmune encephalitis June 24, 2014

Dr. Eric Lancaster Assistant Professor of Neurology, Perelman School of Medicine, University of Pennsylvania The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014.  International experts participated in grand rounds, lectures and panel discussions.  All of the educational videos from the events can be viewed on the AE […]