A newly released precis provides clear diagnostic criteria for autoimmune encephalitis. This effort, lead by Dr. Domingo Escudero, Dr. Francesc Graus and Dr. Josep Dalmau, summarizes the Lancet Neurology article “A clinical approach to autoimmune encephalitis“. The Lancet Neurology article provides the first broadly accepted criteria for diagnosing autoimmune encephalitis. A previous AE Alliance blog reviewed the article and it’s connection to the first International […]
Over 150 patients and family members affected by autoimmune encephalitis gathered in Durham, NC, for a luncheon on March 5. Known simply as the “Family Lunch” the event is a chance to meet others affected by autoimmune encephalitis, laugh, celebrate, remember those lost to the disease, and share stories both privately and publicly. Having grown in […]
If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families […]
After my daughter became sick at the age of two-and-a-half, my husband and I began a quest to find a doctor who could identify what was ailing her and treat her. Six years and 20 doctors in four states later, we were told she had autoimmune encephalitis (AE). The AE Alliance wants to make stories […]
AEA was honored to co-host two educational events in June, featuring one of the world’s foremost experts on autoimmune encephalitis, Dr. Sean Pittock. The events, including a dinner presentation and Grand Rounds, where held on June 12 and 13, in Los Angeles, California, and were co-sponsored by AEA, the Keck School of Medicine of University […]
Susannah Cahalan and Dr. Souhel Najjar NY Times best selling author and AE survivor Susannah Cahalan reads from Brain on Fire and has a conversation with the doctor who saved her life, Dr. Souhel Najjar. The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts […]
Dr. Sarosh Irani Associate Professor, Division of Clinical Neurology; Principal Investigator, Nuffield Department of Clinical Neurosciences The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be […]
AEDr. Maarten Titulaer Associate Professor, Department of Neurology, Erasmus Medical Center The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be viewed on the AE Alliance website.
Dr. Arun Venkatesan Associate Director, Neurology Residency Program; Assistant Professor of Neurology, Johns Hopkins School of Medicine The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be […]
Dr. Jenny Frankovich Clinical Assistant Professor, Pediatric Rheumatology, Stanford University The Autoimmune Encephalitis Alliance hosted a series of Autoimmune Encephalitis awareness events at Duke University Medical Center, March 26 and 27, 2014. International experts participated in grand rounds, lectures and panel discussions. All of the educational videos from the events can be viewed on the AE Alliance website.