Advocacy
The movie adaptation of Susannah Cahalan’s New York Times best-selling book, Brain of Fire, premiered at the Toronto International Film Festival on Friday, September 16. The red-carpet event included pre- and post-movie talks by Charlize Theron, who produced the movie, director Gerard Barrett, Chloe Grace Moretz, who plays Susannah, Dr. Najjar, who diagnosed the disease, and Susannah’s husband, Stephen […]
For World Encephalitis Day 2019, Dr. Muscal talks about his work and research and how he sees the field of AE evolving. Dr. Eyal Muscal is a pediatric rheumatologist at Texas Children’s Hospital with a MS Degree in Clinical Research whose activities include patient care, fellowship education, quality improvement, and clinical research. He is the Childhood […]
Hi, my name is Andrew and I have a version of Autoimmune Encephalitis called Central Nervous System Vasculitis. I was first diagnosed with the broader AE in 2017, and more recently with the more specific CNSV. I’m running the Ironman 70.3 Victoria, BC at the end of May to raise awareness for AE. According to […]
World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222. While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red […]
For World Encephalitis Day 2019, Dr. Irani talks about his work and research and how he sees the field of AE evolving. Dr. Sarosh Irani is an Associate Professor, Honorary Consultant Neurologist and Wellcome Trust Intermediate Fellow with clinical and laboratory interests in the field of autoantibody-mediated diseases of the central nervous system. He sees […]
#GivingTuesdayNow on May 5, 2020, is a global day of generosity and unity, a day to come together and give back in response to the unprecedented need caused by COVID-19. AE Alliance will participate in Giving Tuesday Now and launch the AEA Research Network with webinars by Dr. Sean Pittock (Mayo Clinic) and Dr. Stanley […]
You don’t have to be a runner or walker to support those affected by autoimmune encephalitis on March 4, 2017, but if you are, come share your spirit, laughter, and competitive spirit with 1600 soon-to-be friends at Florence Forth. There is also a wonderful Family Lunch for patients and their immediate families at noon (doors […]
With Rare Disease Day coming up tomorrow, it is important to remember all the ways the medical field can help those who are suffering from rare illnesses. The collection and sharing of data, along with new advancements in technology are helping to break through barriers of rare diseases. Better patient care is ultimately a must, […]