Living Rare, Living Stronger by NORD April 30, 2019

AE Alliance is a member of NORD, the National Organization for Rare Disorders. Each year they host The Living Rare, Living Stronger NORD Patient and Family forum, a patient focused conference. The 2019 Living Rare, Living Stronger NORD Patient & Family Forum will bring the rare community together with physicians, medical students, and allied health professionals for […]

NORD Launches New Program Aimed at Providing Caregivers with Relief May 20, 2019

NORD has launched the Rare Caregiver Respite Program, a first-of-its-kind program aimed at providing caregivers of rare disease patients a much-needed respite.  Caring for a loved one with a rare disease demands significant time, attention, patience and dedication. NORD’s Rare Caregiver Respite Program is designed to give back to caregivers—the parent, spouse, family member, or […]