This Rare Disease Day, and in honor of Brain Awareness Month, HESA and AE Alliance have come together, to kick off our #AskMeAboutAE campaign, visualizing the consequences of autoimmune encephalitis.
No one understands the daily struggles like you and your caregivers. You experience the consequences of AE every day. It is important to talk about what you are struggling with and/or continue to struggle with. Knowing which outcomes are negatively impacting your quality of life, will give doctors, researchers and pharmaceutical companies, a better understanding of AE as a whole. And it can be used to drive research and drug development forward in a patient centered way.
We invite both patients and caregivers to participate. HESA and AE Alliance are hosting the Building Bridges symposium on Saturday April 10th. This symposium is for physicians and medical students and focusses on the importance of a multidisciplinary approach for AE. We will share your selfies and struggles with the doctors attending, so they can see and understand how AE impacts your life.
Watch this how-to video with Maddy (Vice-President HESA) to get started!
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