Advocacy

World Encephalitis Day is around the corner, and the theme for 2021 is Lights, Camera, Action! Lights – Light up a local landmark Red for WED Camera – Wear Red for WED Actions – Raise Awareness The Encephalitis Society launched World Encephalitis Day in 2014 and, in the years since has reached 187 million people. […]

Today is Thanksgiving, a holiday for the family to come together and give thanks. This year will be different as not all families will be able to reunite for the holidays due to COVID-19. This situation may apply to our AE community even more so, as many of you are on immunotherapy or just finishing […]

Only a few more days till World Encephalitis Day! WED is a great day to raise awareness for AE. Take a photo of yourself wearing RED and post it to your social media with the #RED4WED on Monday, February 22nd. WED is also a great starting point for raising AE awareness all year round. Raising […]

On July 11, 2013, the Autoimmune Encephalitis Alliance hosted the NC Premiere of Across the Starting Line, a Short Film, and Book Reading by Susannah Cahalan, Author of Brain on Fire. The event was held in Durham, NC at the Full Frame Theater at American Tobacco Campus, a boutique theater built in collaboration with Duke […]

This Rare Disease Day, and in honor of Brain Awareness Month, HESA and AE Alliance have come together, to kick off our #AskMeAboutAE campaign, visualizing the consequences of autoimmune encephalitis. No one understands the daily struggles like you and your caregivers. You experience the consequences of AE every day. It is important to talk about […]