AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Race connects nearly 2000 people in supporting autoimmune encephalitis victims around the globe

Nearly 2000 runners, walkers, family members, volunteers, and supporters of all ages came out on Saturday to participate in the 4th annual Florence Forth Road Race to benefit the Autoimmune Encephalitis Alliance. Held in Durham, North Carolina, participants traveled from as far away as Germany, Colorado, Canada, Nebraska, Indiana, and California to be a part of …

Read more

The Lancet publishes first broadly accepted criteria for diagnosing autoimmune encephalitis

Today The Lancet released an important paper from Dr. Dalmau et al., providing the first broadly accepted criteria for diagnosing autoimmune encephalitis. Included in the paper are guidelines for diagnosing anti-body negative AE, a frustratingly difficult subset of AE cases to diagnose and thus treat. Many of the paper’s authors attended the International Symposium on Autoimmune …

Read more

“Miracle Flights” provides free medical flights to specialized care and second opinions

“Miracle Flights for Kids” is a Las Vegas based non-profit that provides free medical flight to kids and their families to see specialized caregivers and to seek second opinions. Miracle Flights contacted AEA last year and asked if we would help spread the word about their work. Their mission is “to improve access to health care by …

Read more

University of North Carolina at Chapel Hill offering course on effectively dealing with autoimmune diseases

As part of UNC’s School of Medicine, the “Program on Integrative Medicine,”  is offering a five week course titled “The Immunology of Autoimmune Disease, Inflammation and Chronic Infection: A Research-Based Functional Medicine Perspective.” WEDNESDAYS: 6:30pm-8:30pm, February 17– March 16, 2016. ***Please note change in course dates*** Taught by Dr. Sam Yanuck, whose functional medicine practice …

Read more

The diagnosis and treatment of autoimmune encephalitis

The diagnosis and treatment of autoimmune encephalitis Eric Lancaster J Clin Neurol. 2016 Jan; 12(1): 1-13. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712273/ Autoimmune encephalitis causes subacute deficits of memory and cognition, often followed by suppressed level of consciousness or coma. A careful history and examination may show early clues to particular autoimmune causes, such as neuromyotonia, hyperekplexia, psychosis, dystonia, or …

Read more