AE Alliance Blog

The AE Alliance blog endeavors to educate, inspire hope and build a community among patients, families and caregivers. This blog is written for families, patients, caregivers and anyone interested in learning more about autoimmune encephalitis.

Fun way to explain anti-NMDAR autoimmune encephalitis to kids…and adults

It is rare to find humor in autoimmune encephalitis but James Radke and Levent Efe created a story on anti-NMDAR that is accessible to kids and adults alike. Think of it as a guide to anti-NMDAR for dummies. This creative look at “Cleo” and “Irene” the neurons, and  “Shelia” who has anti-NMDAR on her membrane is …

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Listing of known autoimmune encephalitis antibodies published by Perelman School of Medicine at the University of Pennsylvania

We get a lot of questions about known AE antibodies.  Identification of antibodies on a cellular level has led to a reclassification and renaming of many diseases. Note that many people who have AE are antibody negative, which most in the medical community agree is because all antibodies simply have not yet been discovered. The Center for Autoimmune Neurology …

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Podcast on autoimmune encephalitis to air Friday, Nov. 4

MyNDTalk with Dr. Pamela Brewer is focusing on autoimmune encephalitis on Friday, Nov. 4. The program airs at www.MyNDTALK.org . After Friday’s air date, the program will be archived at there according to the day (not date) the program aired. MyNDTALK app is available for download from iTunes, TuneIn and www.soundcoud.com for public use, and www.prx.org for non-profit & educational use. www.blogtalkradio.com/MyNDTALK-with-Dr-Pamela-Brewer airs @ 8 …

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Autoimmune encephalitis in psychiatric institutions: current perspectives

Authors Chloe Bost,Olivier Pascual, and Jérôme Honnorat published the following in Dove Press an open access peer-reviewed publication devoted to medical  and scientific research. Abstract: Autoimmune encephalitis is a rare and newly described group of diseases involving autoantibodies directed against synaptic and neuronal cell surface antigens. It comprises a wide range of neuropsychiatric symptoms. Sensitive and specific …

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“No miracle, just our brain” by Jules Morgan

Neuroplasticity is the brain’s ability to reorganize itself by forming new neural connections, allowing neurons (nerve cells) in the brain to compensate for injury and disease and to adjust their activities in response to new situations or to changes in their environment. The following is from an article in The Lancet Neurology. Written by Jules Morgan, “No …

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Autoimmune Encephalitis Alliance represented at “Brain on Fire” movie premiere

The movie adaptation of Susannah Cahalan’s New York Times best-selling book, Brain of Fire, premiered at the Toronto International Film Festival on Friday, September 16. The red-carpet event included pre- and post-movie talks by Charlize Theron, who produced the movie, director Gerard Barrett, Chloe Grace Moretz, who plays Susannah, Dr. Najjar, who diagnosed the disease, and Susannah’s husband, Stephen …

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Role of 18F-FDG-PET imaging in the diagnosis of autoimmune encephalitis

The following is from The Lancet Neurology and is a response from Francesc Graus and Josep Dalmau first published in Sept. 2016. We thank Silvia Morbelli and colleagues for their comments on the role of brain 18fluorodeoxyglucose (18F-FDG) PET imaging in the management of autoimmune encephalitis. We agree about the potential use of 18F-FDG-PET in the diagnosis and evaluation …

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