Tag: Faces of AE

Photographby Julie Monacella

“The Wonder Years” – A family’s journey getting to the diagnosis of autoimmune encephalitis

“Doctors couldn’t explain what was happening to Rory, and more important, they didn’t know how to stop its progression. Wracked with worry, I pored through medical journals late into the night. I connected online with other parents whose children suffered similar symptoms … Read More

(Photograph Julie Monacella)

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AE Families Come Together

If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families …

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“We are Survivors”

We are all survivors of autoimmune encephalitis.   Patients, families, friends, caretakers, doctors, nurses, rehabilitation specialists, we have all endured the worst this disease can throw at us.  And we are surviving. This weekend I had the chance to meet four amazing survivors.  Each has their own story to tell.  They shared the same stage: a six-year-old …

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