Autoimmune Encephalitis
Rory Halbert was recognized at a University of Indianapolis women’s soccer game recently as part of TeamIMPACT, a program which allows children with serious illnesses to become an honorary member of a college team. Rory was recognized at halftime, as she is graduating from the program. The team wore green to show support for Rory’s […]
NO LONGER ENROLLING If you are diagnosed with LGI1 autoimmune encephalitis (LGI1) or are the caregiver of someone with LGI1, you may qualify to participate in this study conducted by Fulcrum Research Group. The goal of the study is to better understand the patient experience with LGI1 autoimmune encephalitis for the purpose of supporting potential […]
The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]
Many thanks to Dr. Maarten J Titulaer, MD, PhD, Associate Professor of Neurology, Erasmus University Medical Center, Rotterdam, the Netherlands, AEA Medical Advisory Board Member for speaking at our January 2025 AEA Provider Monthly Education Series and presenting Anti-NMDA Receptor Encephalitis. Since the initial description of anti-NMDAR encephalitis in 2005, we have been able to determine the full […]
Did you know that our largest fundraiser is coming up on March 4, 2017, in Durham NC? That’s right, it is time for the 5th annual Florence Forth run/walk, and Family Lunch. Individuals and teams are welcome. The events in 2016 attracted almost 1500 runners/walkers, 300 volunteers, and 150 family members of those affected by […]
As research on autoimmune encephalitis has progressed over the past 10 years, pioneers in the field have often referred to it as a heterogeneous group of disorders. The commonality in various forms of AE is the underlying pathologic mechanism in a patient’s own immune system. For unknown reason the patient’s immune system has produced antibodies […]
The inaugural Lukapalooza Costume Bash to benefit the AE Alliance was a great success and is in the books! Luke Shriver, an AE survivor, and his family and friends had an amazing time while sharing awareness and raising funds for the AE Alliance. The spirit of community, courage, and the love of good music brought a […]
AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? Raise funds for the 2023 Seed Grant Program. Provide you, the AEA Community a strong understanding of the huge importance of research and AE. What can you expect during May 2022? A better understanding […]
Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]
Many thanks to Dr. Hesham Abboud, MD, PhD, for joining our May 2025 AEA Provider Monthly Education Series and presenting on symptomatic management of autoimmune encephalitis. Dr. Abboud is the Director of Neuroimmunology at University Hospitals Cleveland Medical Center and Associate Professor of Neurology at Case Western Reserve University. He founded and currently runs a specialized autoimmune encephalitis […]