Autoimmune Encephalitis

Leah Ehle’s autoimmune encephalitis survival story December 19, 2017

My name is Leah Ehle. I am married and have two Pugs.  I live in Connecticut and work as a Nurse Practitioner in the field of gastroenterology.  I have worked in the medical field for over 10 years, first in oncology and then after my masters I went into gastroenterology. I have always prided myself […]

Diagnosis of AE on clinical basis confirmed by pediatric study December 13, 2017

Experts in the field of AE came together in 2016 to establish a set of clinical diagnostic criteria to be used early in the course of disease (Graus et al). This was developed so that patients might be diagnosed with suspected AE and treated promptly, while still awaiting test results or in areas where antibody […]

Dr. Jerome Graber Presents “Paraneoplastic” neurologic disorders: A case-based review – August 2024 Didactic August 1, 2024

Many thanks to Dr. Jerome Graber for the August 2024 session of our AEA Provider Monthly Education Series, “Paraneoplastic” neurologic disorders: A case-based review. The session included general principles of diagnosis and treatment for paraneoplastic and autoimmune neurologic disorders and their mimics. NOTE: Case presentation & discussion occurs throughout the presentation and is edited out. The edits […]

Dr. Hesham Abboud – Symptomatic Management of Autoimmune Encephalitis March 3, 2025

We look forward to Dr. Hesham Abboud, MD, PhD, joining our May 2025 AEA Provider Monthly Education Series and presenting on symptomatic management of autoimmune encephalitis. Dr. Abboud is the Director of Neuroimmunology at University Hospitals Cleveland Medical Center and Associate Professor of Neurology at Case Western Reserve University. He founded and currently runs a specialized autoimmune encephalitis […]

Dr. Maarten J Titulaer – Anti-NMDA Receptor Encephalitis December 19, 2024

Many thanks to Dr. Maarten J Titulaer, MD, PhD, Associate Professor of Neurology, Erasmus University Medical Center, Rotterdam, the Netherlands, AEA Medical Advisory Board Member for speaking at our January 2025 AEA Provider Monthly Education Series and presenting Anti-NMDA Receptor Encephalitis. Since the initial description of anti-NMDAR encephalitis in 2005, we have been able to determine the full […]

Dr. Amanda Piquet – CAR T Therapy for Autoimmune Disease October 21, 2024

Many thanks to Dr. Amanda Piquet, Board of Directors & Medical Advisory Board Member, Autoimmune Encephalitis Alliance for speaking at our November 2024 AEA Provider Monthly Education Series and presenting CAR T Therapy for Autoimmune Disease. We discussed the background of the CAR T therapy and its more recent use in  autoimmune disease. We also discussed current examples […]

Dr. Soon-Tae Lee – Seronegative Autoimmune Encephalitis and crytogenic new-onset refractory status epilepticus (NORSE) October 3, 2024

We look forward to Dr. Soon-Tae Lee joining our February 2025 AEA Provider Monthly Education Series and presenting Seronegative Autoimmune Encephalitis and crytogenic new-onset refractory status epilepticus (NORSE). This session is scheduled for February 11 at 7:00 PM Eastern US Time and offered via Zoom. Members of the AEA Medical Advisory Board and Clinicians Network […]

Dr. Eoin Flanagan – Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD) October 1, 2024

Many thanks to Dr. Eoin Flanagan joining our December 2024 AEA Provider Monthly Education Series and presenting Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD). Dr. Flanagan’s session achieves the following: Review relevant references for the session: 1. Banwell B, Bennett JL, Marignier R, Kim HJ, Brilot F, Flanagan EP, Ramanathan S, Waters P, Tenembaum S, Graves JS, […]

Join Us for an In-Person Autoimmune Encephalitis Day September 9, 2024

The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]

Meet Dr. Juliette Brenner October 7, 2024

Dr. Juliette Brenner (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2024 AEA Community Seed Grant for the investigation of Validation of a new (patient-reported) outcome measure for encephalitis. Learn more about her research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have […]