Autoimmune Encephalitis
Experts in the field of AE came together in 2016 to establish a set of clinical diagnostic criteria to be used early in the course of disease (Graus et al). This was developed so that patients might be diagnosed with suspected AE and treated promptly, while still awaiting test results or in areas where antibody […]
The AE Alliance turned five years old yesterday! Five years ago on Dec. 17, two families that had kids with AE came together in hopes that they could start something to help others suffering from this little-understood disease. The vision was to not only disseminate information to help patients but also to give support to […]
Many thanks to Dr. Sarosh Irani for kicking off our new AEA Provider Monthly Didactic + Case Discussion Series with a presentation on LGI1 Antibody Encephalitis. The AEA Monthly Didactic + Case Discussion series benefits greatly from the invaluable contributions of our committed autoimmune encephalitis experts. These professionals volunteer their precious time, sharing their profound wisdom […]
We look forward to Dr. Maarten J Titulaer, MD, PhD, Associate Professor of Neurology, Erasmus University Medical Center, Rotterdam, the Netherlands, AEA Medical Advisory Board Member joining our January 2025 AEA Provider Monthly Education Series and presenting Anti-NMDA Receptor Encephalitis. This session is scheduled for January 23, 2025 at 3:00 PM Eastern Time. Members of the AEA Medical […]
Many thanks to Dr. Amanda Piquet, Board of Directors & Medical Advisory Board Member, Autoimmune Encephalitis Alliance for speaking at our November 2024 AEA Provider Monthly Education Series and presenting CAR T Therapy for Autoimmune Disease. We discussed the background of the CAR T therapy and its more recent use in autoimmune disease. We also discussed current examples […]
We look forward to Dr. Soon-Tae Lee joining our February 2025 AEA Provider Monthly Education Series and presenting Seronegative Autoimmune Encephalitis and crytogenic new-onset refractory status epilepticus (NORSE). This session is scheduled for February 11 at 7:00 PM Eastern US Time and offered via Zoom. Members of the AEA Medical Advisory Board and Clinicians Network […]
Many thanks to Dr. Eoin Flanagan joining our December 2024 AEA Provider Monthly Education Series and presenting Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease (MOGAD). Dr. Flanagan’s session achieves the following: Review relevant references for the session: 1. Banwell B, Bennett JL, Marignier R, Kim HJ, Brilot F, Flanagan EP, Ramanathan S, Waters P, Tenembaum S, Graves JS, […]
The AE Alliance is excited to partner with the University Hospitals Neurological Institute, Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance (HESA) and Encephalitis411 to present and in-person AE Day: “Strides in Autoimmune Encephalitis.” This assembly is an all-day event focusing on pediatric and adult autoimmune encephalitis (AE) for clinicians, caregivers, and the survivors impacted. We […]
Dr. Juliette Brenner (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2024 AEA Community Seed Grant for the investigation of Validation of a new (patient-reported) outcome measure for encephalitis. Learn more about her research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have […]
Dr. Julien Hebert (University of Toronto, Toronto, Ontario, Canada) was awarded a 2024 AEA Community Seed Grant for the investigation of Postacute Management of Anti-Seizure Medications in Autoimmune Encephalitis-Associated Epilepsy. Learn more about his research and how it impacts those affected with autoimmune encephalitis. The start date for the award is September 1, 2024. You have been […]