Tag: anti-NMDA

AEA represented at UK-based Encephalitis Society Conference

Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the …

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AEA executive director speaks at University of Texas Medical Branch

Autoimmune encephalitis was featured at a November 21, meeting of the Osler Club sponsored by the John P. McGovern Academy of Oslerian Medicine at the University of Texas Medical Branch’s  (UTMB). Following a sit-down dinner, the 48 attendees, many of whom were physicians and physicians in training, filled the room to capacity for the program …

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Music, memory, and neurorehabilitation

For many AE patients and family members, time seems to stand still during the long hours spent in the hospital, infusion centers, traveling, or even at home while recovering. This might be eased by the simple pleasure of listening to music. While classical or jazz may be pleasant to one patient, it might not be for …

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Leah Ehle’s autoimmune encephalitis survival story

My name is Leah Ehle. I am married and have two Pugs.  I live in Connecticut and work as a Nurse Practitioner in the field of gastroenterology.  I have worked in the medical field for over 10 years, first in oncology and then after my masters I went into gastroenterology. I have always prided myself …

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Happy 5th birthday to Autoimmune Encephalitis Alliance

The AE Alliance turned five years old yesterday!  Five years ago on Dec. 17, two families that had kids with AE came together in hopes that they could start something to help others suffering from this little-understood disease.  The vision was to not only disseminate information to help patients but also to give support to …

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Diagnosis of AE on clinical basis confirmed by pediatric study

Experts in the field of AE came together in 2016 to establish a set of clinical diagnostic criteria to be used early in the course of disease (Graus et al). This was developed so that patients might be diagnosed with suspected AE and treated promptly, while still awaiting test results or in areas where antibody …

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Make a difference in the lives of children and adults with autoimmune encephalitis today – #GivingTuesday and Amazon Smile

Make a difference in the lives of children and adults who are suffering from this rare form of brain inflammation. #GivingTuesday is today! Black Friday and Cyber Monday have passed so now please take the time to give to others in need. Your gift to the Autoimmune Encephalitis Alliance is used to help patients find …

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Blood-brain barrier studies may lead to breakthrough in AE

We are encouraged that researchers at Columbia University Medical Center in NY, NY recently published a review article, bringing together many facets of research on how antibodies and other types of immune cells are able to cross the blood-brain barrier and gain access to the brain, causing autoimmune encephalitis. They stated that these routes of …

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Autoimmune encephalitis in children – June 2017 review

Researchers in three countries have come together to publish a review article in Current Opinion in Neurology, June 2017. Issues addressed in this comprehensive publication include: challenges in diagnosis, antibody detection methods, treatment decisions, seronegative cases and the challenges in monitoring patients over time. Points of emphasis include the following: Many autoimmune encephalopathies are central …

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