Tag: anti-NMDA

Bortezomib Treatment for Anti-NMDAR Autoimmune Encephalitis

The Journal of the American Medical Association Nuerology reports the following by authors Volker Behrendt, MD1; Christos Krogias, MD1; Anke Reinacher-Schick, MD2; Ralf Gold, MD1; and Ingo Kleiter, MD1: Anti-NMDAR  autoimmune encephalitis, associated with ovarian teratoma, predominantly affects young females.1 Because antibodies against subunits of the NMDAR contribute to the pathogenesis, methods targeting humoral immunity are therapeutically efficacious.2 However, some patients have an unsatisfactory outcome after high-dose corticosteroids, apheresis …

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World Encephalitis Day 2/22

World Encephalitis Day (“WED”) is celebrated every February 22 – just remember 222.  While we at the Autoimmune Encephalitis Alliance focus on autoimmune encephalitis, we are so happy to join in supporting all of those affecting by any form of encephalitis. To show your support for those with encephalitis of all types, wear the color red …

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Your gift is worth double thanks to match by Bob and Suzi Given

Suzi and Bob Given have contributed $25,000 to establish a matching campaign for the Autoimmune Encephalitis Alliance. This means donations we receive will be matched 1:1 up to $25K, by the Given’s gift. Bob is recovering from autoimmune encephalitis and states, “I directly benefited from the work being done by AEA, as have so many others. This donation …

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Fun way to explain anti-NMDAR autoimmune encephalitis to kids…and adults

It is rare to find humor in autoimmune encephalitis but James Radke and Levent Efe created a story on anti-NMDAR that is accessible to kids and adults alike. Think of it as a guide to anti-NMDAR for dummies. This creative look at “Cleo” and “Irene” the neurons, and  “Shelia” who has anti-NMDAR on her membrane is …

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Podcast on autoimmune encephalitis to air Friday, Nov. 4

MyNDTalk with Dr. Pamela Brewer is focusing on autoimmune encephalitis on Friday, Nov. 4. The program airs at www.MyNDTALK.org . After Friday’s air date, the program will be archived at there according to the day (not date) the program aired. MyNDTALK app is available for download from iTunes, TuneIn and www.soundcoud.com for public use, and www.prx.org for non-profit & educational use. www.blogtalkradio.com/MyNDTALK-with-Dr-Pamela-Brewer airs @ 8 …

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New paper on antibodies and autoimmune encephalitis

Abstract Reprinted from Health and Human Services Author Manuscript – Over the last 10 years the continual discovery of novel forms of encephalitis associated with antibodies to cell-surface or synaptic proteins has changed the paradigms for diagnosing and treating disorders that were previously unknown or mischaracterized. We review here the process of discovery, the symptoms, …

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Dr. Luca Bartolini creates survey on best practices to treat anti-NMDA receptor encephalitis

The following information was provided by Neurology, the official journal of the American Academy of Neurology. In the absence of data from clinical trials, anecdotal experience and expert opinion become the main source of knowledge on which medical decisions are made to treat anti-NMDA encephalitis. Clinical approaches and decision-making are apt to change over time …

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