Research
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7253677/
https://nnjournal.net/article/view/1359
https://pubmed.ncbi.nlm.nih.gov/32971385/
A great example of AE Alliance facilitating research is the recently published ‘Best Practice Recommendations for diagnosis, acute-, symptomatic-, and long-term management of Autoimmune Encephalitis’. The recommendations result from the hard work and collaboration between 68 AEA Clinicians Network members from 17 countries, initiated and led by Dr. Hesham Abboud (University Hospitals, OH). These recommendations […]
It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]
It was September 1, 2022 when we introduced Dr. Matteo Gastaldi. Click here for his introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Gastaldi explains the outcomes of his project, the Cognitive teleRehabilitation in […]
Central nervous system neuronal surface antibody associated syndromes: review and guidelines for recognition Zuliani et al. J Neurol Neurosurg Psychiatry. 2012 June; 83(6): 638-645. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3348613/ The concept of antibody mediated CNS disorders is relatively recent. The classical CNS paraneoplastic neurological syndromes are thought to be T cell mediated, and the onconeural antibodies merely biomarkers for […]
The National Health Service of England published the following review of IVIg for treatment of autoimmune encephalitis. The report was released in January 2016. “Evidence Review: Intravenous immunoglobulin for autoimmune encephalitis” Autoimmune encephalitis (AIE) is used to describe a group of disorders characterised by symptoms of limbic and extra-limbic dysfunction occurring in association with antibodies […]
One of the one of the largest university hospitals in Europe, Charite’, recorded significant progress in treating anti-NMDAR, including in patients who did not previously respond to treatment. Anti-NMDA receptor encephalitis is an inflammatory disease that affects the central nervous system. It is a rare autoimmune disease that results in the body producing antibodies against […]
We would like to invite all AE patients and their caregivers to make a difference in research on the disease. Please click on the correct link below and join us in moving the research forward. The AE Alliance is honored to be participating in a study authored by Dr. Anusha Yekoshumar at The Icahn School […]