Research
It was September 1, 2022 when we introduced Dr. Matteo Gastaldi. Click here for his introductory post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2022 AEA Community Seed Grant Final Report, Dr. Gastaldi explains the outcomes of his project, the Cognitive teleRehabilitation in […]
A recently published study is providing a close look at anti-LGI1 encephalitis which, after anti-NMDA receptor encephalitis, is the second most common autoimmune encephalitis. Anti-LGI1 encephalitis most often affects middle aged patients who come to medical attention because of the quick onset (over a few weeks to a few months) of memory loss. Less commonly […]
Making the diagnosis of autoimmune encephalitis (AE) can be very straightforward when the patient develops features that are highly characteristic of a particular AE. For example, a 30-year old woman with new onset psychiatric symptoms such as hallucinations or strange behaviors and who also has repetitive movements around their mouth in their face (known as […]
Edward C (Ed) Arditte served as board member, Treasurer and was Chairman of the Autoimmune Encephalitis Alliance at the time of his passing in 2023. Ed was instrumental in the formation of the AE “Medical Advisory Board” as well as the development of the “Community Seed Grant” program. We are proud to name the program […]
The AE Alliance is honored to receive 27 grant applications for this year’s program. We received applications from 7 countries and 17 states within the US. While research proposals and topics varied, all proposals were similar due to the requirement that all proposed studies must have direct implications for patients with AE. To learn more […]
Dr. Robin van Steenhoven (Erasmus MC University Medical Center, Rotterdam, The Netherlands) was awarded a 2023 AEA Community Seed Grant for the investigation of Seronegative autoimmune encephalitis: exploration of clinical and neuropathological characteristics. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September […]
Dr. Helena Ariño Rodríguez (Vall d’Hebron Institut de Recerca (VHIR), Cemcat, Barcelona, Spain) was awarded a 2023 AEA Community Seed Grant for the investigation of Automated detection of autoimmune encephalitis using artificial intelligence. Learn more about her research and how it will impact those affected with autoimmune encephalitis. The start date for the award is August 1, […]
Dr. Alessandro Dinoto (University of Verona, Verona, Italy) was awarded a 2023 AEA Community Seed Grant for Investigating the role of complement activation and antibody subclasses in anti-LGI1 and anti-CASPR2 encephalitis: a pilot study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is […]
We were recently asked to post and comment on the proposed pediatric autoimmune encephalitis (AE) classification criteria published in 2020. The pediatric criteria followed much of the framework of the adult criteria, but highlighted important difference between pediatric and adult presentations. In addition, the pediatric criteria started from the point of the initial assessment, with […]
Dr. Amaia Muñoz-Lopetegi received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, she provides an update on her research with anti-LGI1 encephalitis: diagnostic tests and prognostic implications. Click here to meet Dr. Muñoz-Lopetegi and hear the research update. The AEA Community Seed Grant program is funded by donations from […]