Research

2023 Research Network Month: Dr. Soon-Tae Lee ~ 2021 AEA Community Seed Grant ~ Research Update May 9, 2023

Dr. Soon-Tae Lee received an AEA Community Seed Grant in 2021. Today, in honor of Research Network Month, he provides an update on his research with seronegative autoimmune encephalitis: clinical characteristics and courses, the effect of immunotherapy and its duration, and prognostic factors. The AEA Community Seed Grant program is funded by donations from the […]

Research Network Month 2023 May 3, 2023

AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? What can you expect during May 2023? How can you ensure you don’t miss out? If you are on Facebook or Instagram, follow us! Not a social media person? Check our blog daily. We may not post everyday but […]

Autoimmune Encephalitis Often Is Misdiagnosed, Even at Specialty Centers – What to Do to Get It Right February 27, 2023

Dr. Eoin Flanagan from the Mayo Clinic in Rochester, Minnesota and colleagues from multiple institutions have published this article demonstrating that more than one in five patients diagnosed with autoimmune encephalitis (AE) were misdiagnosed and that about half of these patients actually had a primary behavioral or psychiatric disorder. Red flags associated with receiving the […]

Meet Dr. Leigh Sepeta & Dr. Elizabeth Wells October 11, 2022

Dr. Leigh Sepeta & Dr. Elizabeth Wells (Children’s National Hospital, Washington DC, USA) were awarded a 2022 AEA Community Seed Grant to investigate the Predictors of Cognitive Outcomes in Children with Anti-NMDA Receptor Encephalitis. Learn more about their research and how it will impact those affected with autoimmune encephalitis. The start date for the award […]

Meet Dr. Matteo Gastaldi September 1, 2022

Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]

2021 AEA Seed Grant Final Report: Dr. Soon-Tae Lee May 27, 2022

It was May 14, 2021 when we introduced Dr. Soon-Tae Lee. Click here for last year’s post where we learned about him, his study plans and how his project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Lee explains the outcomes of his project, Development of optimal […]

2021 AEA Seed Grant Final Report: Dr. Amaia Muñoz Lopetegi May 26, 2022

It was May 26, 2021 when we introduced Dr. Amaia Muñoz Lopetegi. Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. Munoz-Lopetegi explains the outcomes of her project, […]

2021 AEA Community Seed Grant Final Report: Dr. Juna de Vries May 24, 2022

It was May 20, 2021 when we introduced Dr. Juna de Vries . Click here for last year’s post where we learned about her, her study plans and how her project would help patients and families affected by AE. In the 2021 AEA Community Seed Grant Final Report, Dr. de Vries explains the outcomes of […]

Why Research Network Month? A Conversation with Caterri Woodrum & Meg Poe May 4, 2022

The Research Network launched in May, 2020 and resulted in the first AEA Community Seed Grant Program in 2021. This program supports research focused on the diagnosis, management, and outcomes of individuals with AE. The program is funded by members, friends and supporters of the AE Alliance Community. Would you like to know the answers […]

May is AEA Research Network Month: What is it? May 2, 2022

AEA Research Network Month is when the AE Alliance focuses on research funding, collaborations and AE research awareness. What’s our goal? Raise funds for the 2023 Seed Grant Program. Provide you, the AEA Community a strong understanding of the huge importance of research and AE. What can you expect during May 2022? A better understanding […]