Giving Tuesday is Now! December 1, 2020

The 2020 year has been unprecedented in so many ways. Though this pandemic has wreaked havoc in all our lives, our AE community has experienced the disruptions in profound and tangible ways, from interruptions in treatment to implementing particularly stringent measures to protect fragile immune systems. In partnering with you through your journey with AE […]

Thank you November 26, 2020

Today is Thanksgiving, a holiday for the family to come together and give thanks. This year will be different as not all families will be able to reunite for the holidays due to COVID-19. This situation may apply to our AE community even more so, as many of you are on immunotherapy or just finishing […]

Thank you for your Support! May 6, 2020

AE Family and Friends, Our hearts are filled with gratitude for your extraordinary efforts yesterday, contributing to our Research Network and spreading the word to your families, friends, and colleagues about this significant opportunity to invest in AE research through the Alliance.  We set a $10,000 goal at the beginning of the campaign, and we […]

Giving Back on Giving Tuesday December 3, 2019

When I was diagnosed with anti-NMDA receptor encephalitis in 2010, I didn’t understand what that meant – and not just because I had a brain disease. My symptoms, ranging from paranoia and mania to the inability to walk or use my hands, seizures, and no longer being able to read or follow conversations, varied so […]

Brain on Fire 5K for Hope July 3, 2019

The Dewees Family is organizing a 5K run to raise awareness for Autoimmune Encephalitis.  March 2019, just one day after turning 13, Luke Dewees was diagnosed with Autoimmune Encephalitis.  The next month was a terrifying and trying time.  Luke spent more than 3 weeks in the hospital battling this rare and evasive disease.  With the […]

AE Grand Rounds, Duke Medical Center, January 24, 2013 March 24, 2013

Department of Psychiatry and Behavioral Sciences and the Department of Pediatrics, January 24, 2013

Play it FWD Live Music Fest November 13, 2018

A group of talented local high school students from The Fine Arts Center will be holding “Play It FWD” …Kids with a Purpose on December 2nd to raise funds for The Autoimmune Encephalitis Alliance. “Play it FWD” will be an annual live music event with the purpose to support a nonprofit organization of the students’ choice […]

AEA represented at UK-based Encephalitis Society Conference January 23, 2018

Researchers and clinical professionals interested in the study of encephalitis descended on London on Monday, December 4, for the UK-based Encephalitis Society annual conference . More than 120 people from the UK, USA, Denmark the Netherlands and Indonesia joined for a day of presentations and networking on topics surrounding encephalitis. The conference ended with the […]

“Giving Tuesday” celebrated around the world on November 28 November 18, 2017

Giving Tuesday, celebrated on the Tuesday following Thanksgiving (in the US), is a global giving movement in it’s sixth year. In response to  shopping events Black Friday and Cyber Monday, #GivingTuesday kicks off the charitable season, when many focus on their holiday and end-of-year giving. We are always so touched at AEA by the generous spirit […]

Dr. Josep Dalmau Receives Prestigious Award for Research in Autoimmune Brain Disease November 6, 2017

Pioneer in the field of autoimmune encephalitis, Josep Dalmau was recently honored with the prestigious Rey Jaime I Award for medical research in a ceremony in Barcelona, Spain. His group’s achievements are in the area of autoimmune disorders that affect the brain, including the recognition of several new syndromes in autoimmune encephalitis. They are credited […]