Partnerships
Dr. Leigh Sepeta & Dr. Elizabeth Wells (Children’s National Hospital, Washington DC, USA) were awarded a 2022 AEA Community Seed Grant to investigate the Predictors of Cognitive Outcomes in Children with Anti-NMDA Receptor Encephalitis. Learn more about their research and how it will impact those affected with autoimmune encephalitis. The start date for the award […]
Dr. Matteo Gastaldi (C. Mondino National Institute of Neurology Foundation, IRCCS, in Pavia, Italy) was awarded a 2022 AEA Community Seed Grant to investigate the Cognitive teleRehabilitation in patients with Encephalitis of AutoIMmune etiology: CoRE-AIM study. Learn more about his research and how it will impact those affected with autoimmune encephalitis. The start date for the award is September 1, 2022. You […]
Thank you EUROIMMUN for inviting the AE Alliance family to attend the EUROIMMUN Neuroimmunology Summit. All AE Alliance Clinicians and Support Network members are invited to attend this one-day virtual summit bringing together neurologic medical experts from across the United States. The topics to be discussed include: Updated guidelines for the diagnosis of neuroimmunology conditions […]
Our partner Euroimmun is organizing a great webinar that is open to all. The Euroimmun Academy is proud to present the upcoming “Neurology Webinar Series”. Join us on January 28th from 11-12:30pm EST for our first webinar exploring Autoimmune Encephalitis. For more information or to Register for this free virtual event please click here. This […]
The 2020 year has been unprecedented in so many ways. Though this pandemic has wreaked havoc in all our lives, our AE community has experienced the disruptions in profound and tangible ways, from interruptions in treatment to implementing particularly stringent measures to protect fragile immune systems. In partnering with you through your journey with AE […]
Today is Thanksgiving, a holiday for the family to come together and give thanks. This year will be different as not all families will be able to reunite for the holidays due to COVID-19. This situation may apply to our AE community even more so, as many of you are on immunotherapy or just finishing […]
AE Family and Friends, Our hearts are filled with gratitude for your extraordinary efforts yesterday, contributing to our Research Network and spreading the word to your families, friends, and colleagues about this significant opportunity to invest in AE research through the Alliance. We set a $10,000 goal at the beginning of the campaign, and we […]
When I was diagnosed with anti-NMDA receptor encephalitis in 2010, I didn’t understand what that meant – and not just because I had a brain disease. My symptoms, ranging from paranoia and mania to the inability to walk or use my hands, seizures, and no longer being able to read or follow conversations, varied so […]
The Dewees Family is organizing a 5K run to raise awareness for Autoimmune Encephalitis. March 2019, just one day after turning 13, Luke Dewees was diagnosed with Autoimmune Encephalitis. The next month was a terrifying and trying time. Luke spent more than 3 weeks in the hospital battling this rare and evasive disease. With the […]
In the past few weeks we have had some amazing people raise awareness for Autoimmune Encephalitis and raise funds for the AE Alliance, so we can continue to invest in research and improve clinical care. Let’s start in New York City. A friend of one of NYU’s hockey players got diagnosed in the spring with […]
