How Are GivingTuesday & the AE Alliance Doing Good? November 10, 2022

What Do You Know about Giving Tuesday and the AE Alliance? As Director of the AE Alliance, I first learned about autoimmune encephalitis and the Alliance three years ago and it was not until three months ago I began learning about GivingTuesday. Both organizations are doing good. Here’s a bit more detail about their histories, […]

Florence Forth Race draws over one thousand runners and walkers March 16, 2018

The AE Alliance hosted the annual Florence Forth Race on March 3, 2018, drawing over 1100 runners and walkers. Some were AE survivors and their families from all over the nation and Canada. Cold weather did not dampen the spirits of participants as they ran, walked and cheered each other on for this fundraiser that […]

Fellow Survivors Gather at Florence Forth November 25, 2014

I am not a runner. I cringe at the thought of running. So naturally, when Susannah Cahalan told me about the Florence Forth Road Race in Durham NC, I was a bit skeptical. However, when she added that there would be fellow survivors of autoimmune encephalitis attending, I made my decision to go. There were […]

AE patient stars in commercial for Ronald McDonald House February 9, 2016

Hailey Bekos and her family star alongside Cody Calafiore, a former contestant from CBS’s “Big Brother,” to promote Philadelphia’s Ronald McDonald House. Hailey is a 15 year old recovering from autoimmune encephalitis. When she first contracted the disease two years ago she lost the ability to walk, talk, and control her body. Now, thanks to treatment […]

AE Families Come Together January 27, 2016

If you are reading this you already know that autoimmune encephalitis can be an isolating experience. That’s one reason the Autoimmune Encephalitis Alliance organizes and hosts the AE Family Lunch in association with the Florence Forth run-walk in Durham, NC. This year the AE Family Lunch will take place on March 5, 2016. All AE patients and families […]

Today is World Encephalitis Day February 22, 2016

World Encephalitis Day is February, 22, each year – just remember 222. This is a day for all of us affected by encephalitis, whether we are patients, family members, doctors, researchers, or caregivers, to come together and talk about our experiences with brain inflammation and the many forms it takes. While we at the Autoimmune […]

Race connects nearly 2000 people in supporting autoimmune encephalitis victims around the globe March 9, 2016

Nearly 2000 runners, walkers, family members, volunteers, and supporters of all ages came out on Saturday to participate in the 4th annual Florence Forth Road Race to benefit the Autoimmune Encephalitis Alliance. Held in Durham, North Carolina, participants traveled from as far away as Germany, Colorado, Canada, Nebraska, Indiana, and California to be a part of […]

“Life After Encephalitis” a new book by Dr. Ava Easton March 16, 2016

Dr. Ava Easton, a health scientist and researcher specializing in encephalitis, acquired brain injury, and neuro-narratives, and a friend of the Autoimmune Encephalitis Alliance, has recently published a book titled Life After Encephalitis: A Narrative Approach. We are grateful that she contacted us about sharing this important work with patients, friends, caregivers and the medical community. Life After Encephalitis provides […]

Luncheon for patients with autoimmune encephalitis and their families draws 150 people from U.S. and Canada March 24, 2016

Over 150 patients and family members affected by autoimmune encephalitis gathered in Durham, NC, for a luncheon on March 5. Known simply as the “Family Lunch” the event is a chance to meet others affected by autoimmune encephalitis, laugh, celebrate, remember those lost to the disease, and share stories both privately and publicly. Having grown in […]

AEA board member Susannah Cahalan gives keynote address in Florence, Italy May 10, 2016

Susannah Cahalan, journalist and author of The New York Times best-selling book Brain on Fire, and board of directors’ member of the Autoimmune Encephalitis Alliance, gave the keynote address at the Fifth Schizophrenia International Research Society conference in Florence, Italy (the podcast link is below). She shared her story of being struck down, and recovering […]